Dead Slow
Posted , 10 users are following.
I’ve been reading about the deads slow and almost stop tapering method, but it seems that all who are tapering down are still feeling the effects of PMR, does it ever go away or is it just a matter of getting the pain to the lowest level and modifying your lifestyle to suit. Whilst I was tapering from 15 to 11 the pain never worsened but neither did it get better. Once I got to 10 however, it got real bad and the Doc upped my dose to 25, even at 25 I don’t feel any better than I did at 15 or 11. What’s the go?
1 like, 13 replies
dan38655 tony09890
Posted
If I recall, half or so will fully recover with no need for Pred within 3-4 years.
My own taper got stuck at the 15-month mark, I am only intermittently been able to reduce from 6 to 5mg, this being near the point where my adrenals have contribute cortisol to keep the inflammatory response at bay, but it is a slow go now.
I am monitoring lifestyle factors like diet and exercise to see what helps, but the effects of such seem minor. I expect to be off pred perhaps in 7-8 months, but that's just wishful speculation I have to admit. I'm 55 and do a lot of bike riding, which is one activity that I have adhered to no matter the level of symptoms, and no regrets.
constance.de dan38655
Posted
Actually, Dan, you are lucky! "I do a lot of bike riding". Many of us needed help to get on/off the TOILET at first. When in Rehab they put me on a bike and within a couple of minutes I felt as though my hips were splitting in two. I collapsed - they never tried it again!
Anyway, Good luck! Take it slowly! We'll get there in the end.
ray12929 tony09890
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Sheilamac_Fife tony09890
Posted
I find that provided I only taper by 0.5mg at a time, I do not have pain and can move straight on to the next taper. I am tapering to 7mg at the moment and the fatigue is the worst thing. Hoping my Adrenal system will wake up soon.
flydog tony09890
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Silver49 flydog
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flydog Silver49
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ptolemy flydog
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constance.de ptolemy
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ptolemy constance.de
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ptolemy
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tina-uk_cwall tony09890
Posted
now I'm on preds I do not suffer from any pmr pains at all so the preds, in my case, have elevated all pmr pain.
My reduction plan was in line with the Bristol plan but when I got to 9mgs and attempted to reduce to 8mgs I suffered a flare. That was about the time I began to log onto this forum and quite by chance the discussion was about the dead slow and almost stop reduction plan that is recommended from 10mgs downwards. I am now at 7mgs and again I have no problems. I only ever reduce by .5 and it takes about 2 /3 weeks for the reduction plan then I stay on the new reduced rose for 6 weeks so I am reducing very very slowly.
things have slowed down even slower since September when I b one my heel and then ended up in hospital with numerous substantial pulmonary embolisms so at the moment I am on extra meds and I have to take things very slowly.
tyere us a theory that if patients do not respond well to preds, that would be less than 70% then perhaps Drs aught to think about another diagnosis.
oh yes, at the higher doses of preds I never suffered any effects from fatigue but between 8.5-7.5 I did suffer very mild fatigue. Now I have no problems with fatigue at all.
tony09890
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