Dealing with Achalasia
Posted , 2 users are following.
Hi Im a 26 years old women who who was diagnosed with Achalasia 12 months ago.
I had a Hellers Myotomy in Feb this year which allowed me to eat for the first time in months and months. Unfortunately Im slowly returning to the way I was before eg, food is sticking again and finding it hard to swallow. I know the operation is guaranteed to work 100% and have heard stories of peoples symptoms returning slowly and having to have further myotomys and at worse a esophagectomy.
Just wondered if anyone else has had there symptoms return after a myotomy? and what happens next? :?
I suffer terribly from this condition and has had the worse 12 months ever! I dont really want to go through all that again :cry:
Kind Regards
Katie :D
0 likes, 3 replies
jacarr1
Posted
I'm sorry to hear your symptoms are starting to return ,I to have had achalasia for about four years but without the op.
The one thing my asigned surgeon said to me about the op was in his own words \"it may last six months it may last ten years I really can't say\".
It might be worthwhile asking your specialist about having a dialation if you hav'nt already.
My understanding is that the scar tissue forming causes the problem and the better you are at healing the faster it returns.
Katie if you hav'nt read tips for achalaisa on this forum its on page 2 about six down its been helpful for me and if you don't have an electric mincer already they are really useful, I put all kinds of cooked food though mine there great.
Anyway best of luck with your situation hope it improves soon cheers!!.
Kind regards
Jim
Kat85
Posted
Thanks for your reply.
Im going to see the specialist again in December and will be informing him on how Ive been going on with my swallowing.
I think my biggest problem is denial, it all happened so quick, started with difficulty swallowing and before I knew it I couldn't keep anything down even liquids and the registrars and doctors at the hospital kept telling me there was nothing wrong and they couldn't find anything. I knew there was something wrong and after 12 months of struggling I got a diagnosis.
But by this time it was very aggressive and was told an operation ASAP.
Well my head was well and truly up my backside! Because I was told there was nothing wrong for all that time and then to be told you have an incurable condition.
After my Operation I thought things would return to normal but they didn't and the specialist told me I would never eat normal again and that everything was damaged and knackered basically.
Jim I cannot believe you have had this condition four years and not had any intervention?! wow you must be super human!
Kind Regards
Katie
jacarr1
Posted
No not super human just struggling on like the rest of us!
this condition came on slowly to start with then got serious real quick which meant changing the way I ate , even before I was formally diagnosed and four years on my surgeon still says anytime I want the op he'll book me in.
Katie the thing is in the abcence of some miracle cure its a life long modifcation to ones diet, What we can eat and how we eat it with or without the op.
I live in a city of about one million ( Adelaide ) and the surgeon says he's lucky if he sees six people a year with this condition and thats a major public hospital, so I don't think there is alot of research into achalasia its rare and non life threating?
Katie before you get talked into any more MAJOR surgery go back though earlier posts and see what others have said,as for me I'll keep plodding along with soft food and plenty of sauce!!.
Cheers and best wishes!
jim