Dealing with this dreadfull disease
Posted , 3 users are following.
I've had over 13 surgeries since 2009. The surgeries help but as soon as you get operated on in one location another area gets infected. I've had both armpits done successfully, buttocks, groin, inner thighs operated on. I've been infected in most commonly known areas of this disease and still have lesions flaring up. I've been disabled due to this dreadful condition and I'm only 48. Anbody have any recommendations. Thanks
0 likes, 3 replies
ericka89 Jb7567
Posted
matt03271 Jb7567
Posted
Hey JB
Sorry to hear about all those surgeries. Their is a light at the end of every tunnel. I got HS first when i was 11, I am now 21. During this time I have had multiple surgeries and injections from areas in the groin, buttocks, face, and even my neck. Just last year after my final surgery and hopefully my last ever I started taking Humira. This drug is a miracle drug because since that last surgery I have not had a single flare up in the past year which is a first since being 11 years old *knock on wood* . I am able to be as active as I want to be now and I couldn't be happier. I highly recommend looking into Humira, I was hesitant at first but sometimes life is about risks and this horrid disease is worth taking risks over. I hope this helps!
sarah80474 Jb7567
Posted
I lived with this for 18 years. It's awful. Very emotional draining disease so I understand. I am 30 now and I believe I figured out my trigger!! I can safely say I'm seven months free without any flare up! I tried everything like most people and to no avail. Back in January of this year 2017 I had a gut feeling that I needed to cut out sugar. Sure enough the minute I stopped eating candy, ice cream, sugary drinks absolutely no flareup period! I can eat fresh fruit that's perfectly fine so I know my cause is white sugar. I'm so excited that I just want to tell everybody in case sugar is someone else's poison. I know that some people discover other foods being there Ishie you or find relief with medications but nothing else worked for me and maybe the story can help somebody else! I'm so excited that I just want to tell everybody in case sugar is someone else's poison. I know that some people discover other foods being there problem or find relief with medications but nothing else worked for me and maybe the story can help somebody else i'm just so happy because I've never felt so free in my entire life my adolescence was taken away by emotional strain and misery so this is like a whole new life!