Debilitating fatigue throughout the day

Posted , 10 users are following.

Greetings everyone, on here again looking for reassurance since I have been quite down lately. Do any of you experience heavy fatigue throughout the day? I usually get mine after eating. Usually 2-3 times a day, to the point where I am completely spaced out and cannot function. I usually resort to laying down until it wears off. They usually last an hour or two until I feel somewhat functional 

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15 Replies

  • Posted

    Hi Fra-I’m usually bad in the am then at bedtime again. Which is coincidentally when I’m in the worst stiffness and pain. I’m sorry you’re experiencing this. I’m trying UBI with ozone and supplements. Let me know if you want to know more. I’m Melissa. 
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  • Posted

    Hey there. Yep my last lingering symptom is debilitating fatigue.  Yesterday I felt pretty good and today I’m so fatigued I can barely function. And I have no idea what triggered it. It’s the absolute worst.  I’m at 10 months in. Hoping this goes away soon. Hang in there! 
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  • Posted

    I know exactly how you feel. But I've learned not to fight the fatigue. When I get that worn out, I lie down & sleep as long as need be. If I push myself, I just get worse. All the advice I've gotten, and my years of experience with this disease have taught me to listen to what my body is telling me. Don't fight it. Get all the rest you need, drink plenty of liquids, and eat healthy foods. Best of luck to you. This too shall pass.

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  • Posted

    Hi Fra,

    So sorry to hear about the awful fatigue you have been experiencing, it really is so awful and frightening to go through something like that I know. I really do want to reassure that with mono, the fatigue is a normal thing even for months during the recovery process, but that it DOES go away and your full body strength and resilience DOES come back again. I remember thinking my body would never be able to handle anything stressful again, but it did given some time.

    You're doing the right thing resting when you can, that's really important to listen to your body and be kind to yourself as you need the rest while feeling that way. Pushing on through is so tough and can cause setbacks. Do you take any vitamins / herbs? As well as a good multi-vitamin, for energy levels taking a B complex vitamin (B100 or B50) and Co-enzyme Q10 can really help your system and help manage your energy levels better.

    And remember without doubt you ARE going to get through this and make a full recovery - definitely you will get there Fra, I know how down and depressed this virus gets you, but it does pass over given time and even after an extended period of time still does - it took me many months but eventually I got there thanks to God. Praying for your healing today Fra.

    Craig

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    • Posted

      Hi Craig,i take the Immunace extra supplement,heard you mention that on here,it seems to be a good one,do I need a separate vit b complex or is there enough in the Immunace,always wondering if some extra b vitamins would help thanks and hope your doing ok

       

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    • Posted

      Hi Diane,

      I take the immunace extra too, have done for many years and have found it to be a really good one (3 for 2 in Boots usually!). I also take a B100 complex vitamin on top of that, I used to be worried about doing that like you in case you were taking too much of the B vitamins, but from what I've read (and again I'm no expert) it's very hard to take too much B vitamins and excess just causes you pee to go a bright yellow colour - so it's worth trying the two together as I say I have done that for many years without any bother and think it can only help boost your immune and nervous system further to deal with this horrible virus.

      Thinking about you and hope you are doing okay Diane, sending thoughts and prayers.

      Craig

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    • Posted

      Thanks Diane, means a lot right now and you are most definitely in my thoughts too, you have been through so much I just really trust that God is going to bless your life and turn things around and put an end to this hardship once and for all - He wants you well Diane and just praying for His intervention to pull you through and make you feel well and strong again.

      Good luck with the B complex, definitely worth a go they do help!

      Craig

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  • Posted

    Hey all. You be had chronic EBV for seven years. Yes. SEVEN YEARS. It’s being treated now with UBI and ozone along with antivirals (RX and supplements). I’ve hurt and been fatigued fo seven years/ since September 2011. 
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  • Posted

    Hi!! Yeah the Fatigue is the worst part of this virus in my opinion. I get it in a Zig Zag pattern, a few days I'll just have light muscle aches in legs, and then I'll be practically debilitated. Can't wait for it all to pass!

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    • Posted

      Liam I also have less than crappy days. Then really crappy days. My dr says it’s the virus being attached by our immune response. It jumps all over the virus then needs to recoup. That’s why we see that zig zag. You’re right. I’m glad you brought that up. He says as we get more healthy there will be longer periods of better health and fewer bad days. Xo
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    • Posted

      Melissa words can't express what you must have been through in your situation, so sorry to hear you have had to deal with this awful illness for so many years. Sometimes it's so hard to understand why some people face such terrible trials, but I do believe God still has a good plan for everyone here on the site and that He is a healer today as much as ever, it's hard to hold onto hope when things go on so long, I totally understand. Just hang in there and thinking about you today.

      Thinking about you Lob and Liam too, I know you guys have been going through such a tough time and my thoughts and prayers for you also. Please keep a thought for me as struggling at the moment too with my situation.

      Craig

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  • Posted

    Hey everyone, while a few of us are talking (Sorry Fra). I have a question(s): Do any of you know your titers (blood levels) for EBV? Mine are:

    EBNA=220 U/mL 

         Negative is <10

         Postgate is > 21.9

    EBV Early Antigen IgG=43.9 U/mL

         Negative is < 9

         Positive is > 10.9

    Please share if you’re comfortable. I’m just not sure ‘how’ high mine are. My dr thinks they are quite high. 

    Thanks. 

         

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  • Posted

    i would not describe it better. Unfortunatelly I used to push through and probably thats why my illness lasts for such a long time. But I have that definitely.
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  • Posted

    Hi Fra206,

    The fatigue can be one of the most frustrating symptoms since it prevents you from doing such basic day to day activities and prevents you from feeling just human sometimes too. I found my fatigue was always worst from 830am - 11am and then again after lunch. My energy would usually pick up after 330pm. I found taking note of any patterns during the illness really helped me feel slightly in control of an otherwise out of control situation. Knowing that "I'm starting to feel really tired- oh it's 830am, yep that's why I feel so terrible" really helped me to not feel completely helpless every day and also reminded me to not fight the fatigue and to just alott those periods of time to rest. 

    It's such a horrible illness but what you choose to do today towards your recovery will make all the difference in a few months when your immune system finally starts to overcome the virus.  I am ten months in now and the past week I have felt 90% normal again. I often silently thank the me of nine, eight, seven months ago for just resting and being patient instead of trying to push through. I am definitely benefiting from those choices today. Wishing you a speedy recovery. 

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