Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

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The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

54 likes, 1428 replies

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  • Posted

    Any of you experiencing periods of remission, even if it is just for a day or a few hours? I have spells where I feel a lot better but never as good as I felt before this all started again 14 month ago. And even more important does any of you feel like your cognitive symptoms are getting worse over time, especially problems with focusing and short term memory.
  • Posted

    Hey,

    I have exactly the same problems, had every test under the sun, all clear.

    How are things for you??

  • Posted

    Hey Taylor,

    Our stories are scary simular. Just wanted to say first off, hang in there....this goes for everybody!. If a couple good friends/family memebers don't know about your issue(fog) make sure you change that fast, you need the support and if you have a starnge feeling of guilt...get rid of it.

    I'm currently 36 but back in college when I was 21, I woke up one day with this fog. Almost feels like a pressure or like somebody put a vaccum against your ear and sucked some air out and then sealed it quickly.

    What is does:

    General feeling of uncomfotableness in my head

    Brutal Memory..just brutal

    Inability to concentrate

    Processing speed of information reduced

    As a side product from clearly not being myself and being scared and stressed about the future, I also became depressed but I feel it's a product of circumstance.

    After visiting neoroigists, eye doctors, gereral practicians, MRI blood tests and coming up with nothing....eventually...somehow it went away...at least briefly.

    My Doctor had me on Paxil as a " well, why not..nothing else is working kind of thing". So i originally attributed it going away maybe because of it but after years of trial and error, the Paxil just triples the memory nukage and while it it I can still get the fog.

    I've learned some interesting charactoristics about the fog too:

    #1 Smoking weed can take it from bad to unfathomably bad.

    #2 For some reason, it seems like I have a light tremor in my teeth...ever so slight when I put them together I can feel it

    From doing lot's of reading on Brain fog and this seemingly can be from a bunch of factors, make sure these things are checked:

    Lyme disease

    Thyroid

    B- Vitamins

    Gluten sensitivity 

    I've mainly been grinding for 15 years. I worry about losing my wife/job all the way to being on the streets because of this terrible condition that kno body seems to have any clue about.

    For me at least I seemingly get breaks from it which is a lot more then some people reading these forums.

    Everybody please continue to share any or all new information so we can help each other.

    If anybody needs help or has any questions please feel free to message me.

    Paj

     

    • Posted

      Paj i also get the tremors  ..did you find anything that helps ?
  • Posted

    Taylor, I'd be curious to find out if you have found any solutions to your condition. 

    I have followed some of the stories about towns being evacuated from contamination in the water at their homes. Now follow me for a second, because although it might start sounding overly dramatic, there are many symptoms that people don't realize come from a very basic source of life, water. But, not because it's natural water, but because the water served to our homes is filled with chemicals and in certain cases, have been contaminated with leaks of gases and other dangerous chemicals to our system. These people being evacuated have suffered from major illnesses, so the contamination has been very high.

    But, in most cities, water is "filtered and decontaminated" with 2 of the chemicals we deem as safe, because we see it in toothpaste and swimming pools, which are  fluoride and chlorine. These are the known symptoms correlated to these chemicals: Depression, low energy, fatigue, low concentration, poor memory, foginess reduced sex drive, headaches, tendencies towards excessive weight.

    In short, I just want to propose, since most have you seem to have tried everything, continue to work hard on an organic, clean diet, and excercise, but also take into serious consideration your water source and any products that contain fluoride and chlorine. I have a strong feeling that will make a big difference. If you can, find water from a natural spring, and use it for every need including showers, because the skin absorbs a lot of what goes on it. Don't use skin products, our body produces everything we need, and if you have to, find natural ones. 

    Also, if you can't find a natural spring, get a serious water filter for your entire home. I would really like to hear if you find this helps, although it might take some time. 

    Looking forward to hearing from you.

  • Posted

    hey, i feel the exact same way where i just feel stoned. it usually happens in the mornings when people try talking to me and they get lound i start to feel dizzy and lethargic like nothing is real and it feels weird to move especially my arms and fingers. i also get this faint feeling too. this is honestly feaking me out and i hate it so much and it has pretty much taken over my life and i was wondering if you had any input on it, anything will help. Even if you also dont know whats going on and i have a feeling depression and anxiety might have a role in this but i just want you to know that your not alone and im happy i found this, 

    meara

    • Posted

      Nothing feels real ???? O yea iv been saying this for 16months since I hit server anxiety and depression (postnatal) it's like your walking through a dream? Watching life go by but your not really part of it now, u love in the nothing ?
  • Posted

    Deficiency in B12 causes all of these symptoms, and it can take years before it will show up in a blood test.  

    Neurologists generally suggest taking B12 supplements for a few weeks to see if they help.  

  • Posted

    Hey Taylor I ran a crossed ur post here about 2 half months ago I all the sudden started feeling exactly how u described just wondering if u ever got over it or figured out what was going on
    • Posted

      Is it like your a ghost ? Erm il try explain.... like your not really here, looking from the outside in, dream world, feeling like your in a glass box looking at the world ?
  • Posted

    Hi Taylor, I have the same question, since you are not responding, you either got better and happy or dead wink do you have anything to share about recovery? Thanks for any help
  • Posted

    You have described my symptoms exactly. My symptoms--brain fog, extreme fatigue, memory struggles, and the ever-present zombie-bubble-head sensation--are my reality three or more days a week. It seems to be getting worse. I also experience mouth (tongue and lip) tingling, low grade fevers during sleep, and occasional but persistent edema. (I've been taking hydrochlorothiazide for the edema for years, but now its not working as well...)

    Another clue, in case anyone finds similarities...I relocated to the Chicago suburbs from the Southeastern US approximately one and a half years ago. (July 2014) After my first full night in the area--eating the food, drinking the water--I woke the next morning with a debilitating fatigue and a physiological-level depression that kept me in the hotel bed the entire next day. I was barely able to leave the room. The next day, I was exhausted but able to get up and out. I didn't connect it to my relocation until a year later when I noticed my symptoms were graduatlly worse over the next year.

    Now, my brain fog / fatigue symptoms are worse and more "regular" every other day and for days at a time. 

    Is this the my new reality? sad

    Thank you so very much for posting this Taylor. You've helped me more than you can know. It helps me just knowing I'm not the only one this is / has happened to. I have an appointment tomorrow to discuss testing. I'm going to bring what I've learned here about silent migranes.

    Ciao, Ssmile

    • Posted

      I think all this is classic depression and anxiety. It's all about not been present in the now sad iv had this 16 months
  • Posted

    It cant be just anxiety and being deppressed, if you experience neurological symptoms and others then the anxiety and depression will come natural with it and it wouldn't make sense not to feel like sh*t experiencing symptoms with no answers to not cause concern.

    I have had vague everyday symptoms for 10 years and my best advice is to change your diet and cut out sugars and fast foods, also dont smoke or drink alcohol. My symptoms flare up worst a day or so after drinking, i smoke to relieve stress from my symptoms kinda to give me a excuse to feel sh*t unfortunately,

    Constant spaced out feeling

    Brain fog

    Memory problems

    Dizziness off balance feeling

    Feel generally sick everyday

    Un provoked panic attack and anxiety

    Weakness

    Abdominal problems

    Vision is like the world is not clear and out of focus

    On and off symptoms of other stuff as well

    Ear tinnitus and hearing changes

    All of which is uncomfortable and feels impossible to deal with, i keep active with sport and fitness every week which is some relief,

    I live in Australia and my symptoms have matched alot of lyme disease symptoms but that disease is not recognized here and the government states it doesnt exist here even know theres some significant evidence supporting the case.

    Although im lucky and dont experience pain at all but i know there is definitely something not right.

    Look up all lyme disease symptoms.

    Dont get fooled by telling your doctor or gp all your symptoms for them to turn around and say its

    Anxiety

    Depression

    Cfs

    Or something that is in the common diagnostic handbook for doctors -_-

    It frustrates me that they just assume its something when its not.

    Anyway best advice is to not give up in hope and keep searching and keep trying to find answers, and remember if you lived with it for as long as i have its not a rare disease thats life threatening but its certainly uncomfortable.

    Also find a gp that will actually sit down and listen and try different paths to help. And not just order a trip to a psychologist and hands anti depressons.

    Dont give up

    • Posted

      I completely agree with you Dylan. anxiety and depression don't appear out of the blue air, they are the consequences of something else, they are symptoms as are fatigue and all other complaints.

      Too bad you can't have a Lyme test, at least you would be able to rule it out, now you have to keep guessing.

      I have all of the symptoms mentioned in the original post, and recently discovered I suffer from 'silent' migraine (no headaches). Never knew before that it comes with all these diffuse complaints but it matches perfectly. Am going to do a Lyme test anyway, just to rule that out. it's unfortunately possible to have two diseases at the same time.

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