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Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

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TaylorMason
TaylorMason

The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

54 likes, 1428 replies

1428 Replies

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  • TaylorMason
    TaylorMason

    Edited

    My Symptoms are ever present. There is not better or worse. There just...IS. 

    brain fog, memory loss, feeling totally spaced out and not awake...24/7

    • TaylorMason
      TaylorMason rachel62244

      Edited

      Think I'll begin to get my memory skills back? Any insight with that? without my memory...life seems a whole lot let valuable. What's the point in doing something, if only to forget? Life without memory is treacherous. I desperately want mine back!
    • TaylorMason
      TaylorMason rachel62244

      Edited

      After talking with someone who experienced depersonalization/researching the sensation experience described was: it was as if they could see themselves from another point of view. Which is not at all the case for me. I just feel High...like I smoked some marijuana...except...no good feelings. haha
    • rachel62244
      rachel62244 TaylorMason

      Edited

      I often get confused i can remember but i have to put the pieces together i wouldn't say its memory loss with me just confusion jumbled up thoughts. my concentration improved with medicationbut i'm definitely not back to normal yet. 

      Hope u get better soon! 

    • rachel62244
      rachel62244 TaylorMason

      Edited

      Its more your surrounds don't seem real ? Your floating by. I know totally what u mean im honestly the same way. Its anxiety and depresssion stuck in your head and your body protecting you from it although it feels awful. My meds have lessened it for me but its still there 24/7. U need to get some help I can't believe your doctor hasn't said anxiety disorder 
    • Sackorats
      Sackorats TaylorMason

      Edited

      It sounds a lot like narcolepsy. I had all of those symptoms and after having multiple sleep latency test (MSLT) done found I have narcolepsy.
    • andrewsarower
      andrewsarower TaylorMason

      Posted

      Im in the same boat. Any fixes yet? I just feel stoned all the time. Like my brain is wrapped in setan wrap and too tight. Its been only 10 days, about a week after my uncles funeral.
    • jmcg2014
      jmcg2014 andrewsarower

      Edited

      Anxiety is what it is, with all its masses of offshoots. Lots of thing to try for anxiety, if it's short term then just getting on with life works well. Longer term meds or therapy or both.

    • dylan12268
      dylan12268 jmcg2014

      Posted

      Theres more conditions out there then anxiety that are the problem. Sure im not saying your wrong but some people have problems that drs cant figure out so they just assume its Anxiety. Or the person presents anxiety as a result of there condition.
    • jmcg2014
      jmcg2014 dylan12268

      Edited

      No, drs don't do that. If a Dr doesn't know, then they refer on to someone who may know. What you mean is when someone doesn't believe a Dr then they make these claims, that's not the same thing

    • dylan12268
      dylan12268 jmcg2014

      Posted

      I find it quite ridiculous that your speaking as doctors as a whole, i can garuntee doctors do that and im sure people on here would have experienced short minded "professionals" who no nothing but textbook work because thats what they are taught.

      There are conditions out there that aren't as recognized like they should be so a suffering patient with neurological symptoms or pain or mental illnesses could be due to a specific cause. Not anxiety!

    • Renitence
      Renitence jmcg2014

      Edited

      They completely do that from my personal experiences. The doctor assumes its anxiety when they cant figure it out, or because it appears to be anxiety, so you get referred to a psychiatrist instead of a specialist that can actually figure this condition out. And it's not anxiety in my case because I've already been down the "psychiatric route", and nothing has been solved. If you're calling out everyone on this discussion because they don't believe a doctor's opinion, you really don't understand what it's like. Also your comment proves exactly what most people would say about this condition because they don't know what else it could be besides good ol' generalized anxiety disorder

    • jmcg2014
      jmcg2014 Renitence

      Posted

      Just because anxiety and depression can't be solved quickly doesn't mean the diagnosis is wrong. And just because any one of us don't believe our diagnosis,that also doesn't mean it's wrong. People can spend years coming to terms with their diagnosis, and struggling with making any headway with symptoms. I wasn't the one making gross generalisations so be careful with your tone. If you disbelieve drs so much, that's up to you- but why would you continue to return to the same dr? And if more than 1 dr is telling you the same thing, are they all lying? Don't have a go at me, I'm not bothered if you don't agree -your call, if your paranoia about drs is leading you to think like this- that's a shame. As you've said you've been down the psychiatric route,i presume you've tried every form of therapy out there, couple with every form of medication and you've continued to do that for months and years while being fully engaged in the process? Because that's what it takes for all of us. Again - your call but again- be careful of your time when you are replying

    • dylan12268
      dylan12268 jmcg2014

      Posted

      You dont know what people have gone through with doctors or what problems they have so what gives you the right to assume your opinion is right?
    • jmcg2014
      jmcg2014 dylan12268

      Posted

      Your missing the point, read back ,- I wasn't the one making the generalisations,and I've also plainly stated that it doesn't bother me at all . I have my opinion, I don't really care about anyone elses. Be sure to read and not make assumptions

    • christophe95394
      christophe95394 TaylorMason

      Edited

      Everyone experiences depolarization differently, it could be a mixture of severe anxiety causing prolonged stress on your brain tiring it out. Causing brain fog. Witch causes more anxiety witch makes the brain frog worse. Witch makes your anxiety worse.... you get where im going. Your probably too late for personal care you shouls try seeing a psychologist.

    • Hwinland
      Hwinland jmcg2014

      Edited

      I have experienced horrific labor and now havery the same symptoms...what helped you feel bettert? I struggle everyday with a baby...so hard. The strange thing is, it all went away for about 3 weeks and I was perfectly fine then it all suddenly came back. I even hyperventilated.
    • jenbate310
      jenbate310 Hwinland

      Posted

      Mine started 6 months after having my first baby, hoe u dealing with it now?
    • jeremy04366
      jeremy04366 dylan12268

      Posted

      Vitamin d levels can cause all of this or chronic fatigue syndrome
    • melina21599
      melina21599 rachel62244

      Posted

      How are you doing now? Has it gone away completely ? I’m struggling with same symptoms... is all due to anxiety? 
    • jenbate310
      jenbate310 rachel62244

      Posted

      Hi there I'm still the same still searching for answers, been trying to change diet to see if it helps , its deverstating 

    • k08610
      k08610 TaylorMason

      Edited

      I understand been going through hell for 8 months..... Trying so many things, now doing TMS... Will post if I see improvement. So far only Ativan gives some relief.

    • k08610
      k08610 TaylorMason

      Edited

      I can relate, this started for me the end of March, Covid madness. I got horrible sinus pressure like never before, was breathless and was stumbling for a week. Pressure in head was constant. With that came zombie life, bad memory that got worse as panic , anxiety and depression grew, things feel and felt far away as they happened long ago. Its insane. I could recall my day in fine detail before this, lime every step of the day!!!! Now I'm a shell of who I was, I lost 30 lbs am skin and bones.Whatever this is its horrible. They forced me on Ativan and going for TMS which is done by a neurologist.. I pray for all of us if anything gets better I promise to post.. Love you guys all my heart breaks for all of you.

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