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Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

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TaylorMason
TaylorMason

The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

54 likes, 1428 replies

1428 Replies

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  • deirdre._03652
    deirdre._03652 TaylorMason

    Posted

    Hi to all on here....

    I am so sad to read all of your stories....I can totally understand ..I have exactly the same symptoms...I forget how to use the telephone, and the television....like all of you, I had the terrible exhaustion, severe aches and pains....and the worst part, like everyone else...complete loss of joy in anything and everything....I have an adorable little grandson, and I feel almost nothing...it makes me feel so alone....which I am not, I live with my hubby and three adult sons ( who suffer from paranoid schizophrenia )

    I also have a daughter....hence the grandson....

    I am so upset not to feel love, excitement or enjoyment....

    Anyway...the whole point...after years of this and doctors visits..I was referred to a rheumatologist ***** I was diagnosed with

    FIBROMIALGIA******* as I was already on antidepressants, it was raised to the highest dose....I take a few different things...

    SERTRALINE...TRAMADOL...PREGABALIN....HRT.....SIMVASTATIN....CO-CODOMOL AND A COUPLE MORE ....

    I feel a little better having a diagnosis...also we have a support group, we all meet once a month....

    I really still find the lack of any kind of happiness the worst part...I look to the future with a terrible sense of dread !!!

    I do so, so, so hope that you all find an answer, I feel for you all so much...let's hope and pray that they find an answer....and treatment for ..EVERY SINGLE ONE OF US...

    I wish you all happiness, good health...and true peace of mind...take good care of yourselves....warm, and sincere hugs...and nd nd more hugs to you all, xxxxxx

  • Rockers
    Rockers TaylorMason

    Posted

    I`m living in Japan and have very much the same problems as you guys. Now I went to a quit a few different massage practitioners over the last couple of years. And each of them said that the probelm I have is related to the stomach. They can feel how hard certain massage pressure points are. The ones on my feet that relate to the stomach were and still are very tender and hard.
  • emilylawless
    emilylawless TaylorMason

    Posted

    Does anyone have any other head symptoms that they wouldn't mind sharing ? I feel like when we hear other people's symptoms it kinda makes us feel better like ok I know I'm not the only one smile

    • Renitence
      Renitence emilylawless

      Posted

      Cloudy, memory is like 25% there. Kind of like thinking through a barrier. Also can't sleep because my head feels like it's frying when I try. Quetiapine fixes that for me

    • dylan12268
      dylan12268 emilylawless

      Posted

      What type of head symptoms?

      Like headaches or psychiatric lol

      I get random racing thoughts about the strangest suff especially more if im tired

      My brain feels wrapped in plastic

      I have visual snow and floaters

      Earaches and ringing in ears

      Memory problems etc

    • Renitence
      Renitence dylan12268

      Posted

      Those random Racing thoughts before I sleep are what makes my head fry lol. My eyes are weaker too. Sensitive to light and my reaction time is slower.
  • emilylawless
    emilylawless TaylorMason

    Posted

    Yes meaning physical symptoms. I get chest pains heart Palps weak legs and tingly hands.... Tingly/ sizzling feeling in head... Pressure in head... And I feel like I'm starting to get not exactly ring inning in the ears but something like it

    • Renitence
      Renitence emilylawless

      Posted

      You should get a hair mineral analysis done. It could be heavy metal toxicity
    • dylan12268
      dylan12268 emilylawless

      Posted

      Could be a silent migraine but who knows really,

      Ive considered everything possible to get some relief but a hair mineral analysis might give some answers too so thats what im planning on doing next

    • dylan12268
      dylan12268 emilylawless

      Posted

      Silent migraines are harmless im pretty sure google silent migraine symptoms and see if you fit that criteria, you might have a few symptoms but not all

      I personally reckon i suffer from lyme disease or neurological lyme but its not recognized in Australia

    • dylan12268
      dylan12268 emilylawless

      Posted

      Well if theres too much of a metal in your body then it can be dangerous, copper toxicity can cause all sorts of problems and build ups can occur from food or old water systems and birth control medications.

      Or mercury can cause problems too and thats generally from teeth fillings and other sources like fish.

      All metals can cause a huge ammount of symptoms but a test too see what your high in and then a diet to get control over it might help and its worth taking a look at.

      People are sceptical on wether the tests are accurate or not but its really how you feel after treatment you'll know

    • emilylawless
      emilylawless dylan12268

      Posted

      Hmm I'll have to look into it.... I've gotten a lot of blood work done and I had a ct scan on my head 2 months ago dr said it was all good

    • Renitence
      Renitence emilylawless

      Posted

      Until my other reply gets moderated *sigh*, I've been diagnosed with sleep apnea. Do you have any problems sleeping? Untreated sleep apnea can cause brain fog due to lack of oxygen to the brain. Good news is that it is reversible. If you have a deviated septum or large tonsils they are most likely the problem.

    • dylan12268
      dylan12268 emilylawless

      Posted

      Ive had all tests done too and have seen neurologists and hqve had numerous blood work, but i know theres definitely something wrong but i wont let people tell me otherwise.

    • ldibart
      ldibart emilylawless

      Posted

      I understand the like buzzing in the head almost like very fast vibrations  and the pressure in my head ..thats like all day long and sinuses like up behind the eyes at times pressure  .now the others these next symptoms . I have heart palpations ..weakness in my legs and tingly hands ..mostly on waking up abruptly ..but when that happens I am sure I am going to die ..however after spending so long with it I assume I should be dead already ..yet ..I will still think it hahaha ..maybe insanity is mixed in there for good measure! lol I like this site because there are symptoms I totally forget about ..hmm..probably cuz my memory is crap too ..argh .. but it is good to get the entire list and bring it with me for the poor unsuspecting DR thats going to weed through it all ..which reminds me ..does anyone have like a tingly almost wants to go numb on your tongue ..this is new within like 5 or 6 months ..ago..
    • emilylawless
      emilylawless Renitence

      Posted

      I had a sleep study done when I was like 12 but I don't know what the results were I don't believe I have that.... I do sleep horrible tho cause I have a two year old that still wakes up in the middle of the night ???????? and even when he does sleep through the night or I don't have him for the night my body is still so used to it so I wake up anyway ?????? I'l aways tired and I've always had add and can't concentrate and get the brain fog/derealazation it's so weird it's like sometimes I'm not even there like everything is going on around me but I'm just not with it. And then the pressure in my head mostly on top and in forhead

    • emilylawless
      emilylawless ldibart

      Posted

      Yeah I get pressure in the sinus too like in my for head.... And tingly hands and weak legs are like a BIG sign of anxiety I get it so bad! I can't drive sometimes! Last week I was driving back home with my family (9 hour car ride) it was my turn to drive.... Wasn't even driving 20 mins and my heart skipped a beat (flutters) then I started getting chocked up in my chest and throat and then sweaty tingly hands super weak legs like jello and then started crying had to pull over for my husband to drive lol but right away when I'm starting to have like a lot of anxiety or a full blown attack I get the Palps and tingly weak hands and legs

    • Renitence
      Renitence emilylawless

      Posted

      I really think you should get another one done. I've noticed that if I get around 7 hours of sleep the brain fog is less. If its more or less than that it's worse. It's tricky getting the perfect time

    • emilylawless
      emilylawless Renitence

      Posted

      Yeah I'll look into it and ask the dr

      Regardless with a 2 year old I'm not getting much more sleep lol

    • rebekah2222
      rebekah2222 emilylawless

      Posted

      I feel the same way as you, it really sucks. I have a 3 year old so I can understand the sleep part too lol.
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