Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

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The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

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  • Edited

    Hello again

    I wrote about my symptoms a couple of months ago... i soon discovered that i have iron anemia so i started iron infusions and after three weeks i started to feel better... more energetic, more outgoing... iron was causing my anxiety symptoms... i can't say that my brain fog symptoms disappeared completely but it certainly got better !!! Plz check your iron levels if you still haven't...

  • Posted

    Hi have you been tested for fibromyalgia just I suffered with all the same symptoms for years all yesterday coming back fine eventually I was diagnosed with fibromyalgia the trigger is stress hun ask to be tested as it's very hard to diagnose x

  • Edited

    This post is gonna be long, but stick with me as this could essentially help you figure out what's wrong with you.

    Tomorrow will be exactly 4 years since these symptoms have started for me. When it first happened, it was so bad I was constantly in and out of the emergency room because I didn't know what panic attacks and brain fog were. I just assumed I was dying. I eventually got to a point where my doctors were just telling me it was generalized anxiety. I'm not trying to take away from what they're saying, but it wasn't anxiety and then the symptoms, it was the symptoms that brought about the panic attacks.

    3.5 years and 5 doctors later, I finally found someone who gives a damn. My doctor has run every test you can imagine. I literally at this point don't even know what he can check anymore. The worst of it was a vitamin D deficiency and a slight b12 deficiency. The vitamin D deficiency has already been treated but because of the terrible brain fog, the vitamin b12 just makes my body feel like it's going haywire at even the smallest doses.

    I keep fighting because I know that something is wrong with me outside of a mental illness. In my struggle for answers, I have tried just about everything that doesn't require medication. Exercise, changing my diet, sleeping more (pfft that's a joke), and meditation. And not the breathe and relax kind of yoga. Guided deep Reiki meditation. They're great for the anxiety but don't do anything for the brain fog. So I kept searching.

    I started seeing a chiropractor because of the constant neck and shoulder pain over the years that I was told was caused by being in a constant state of anxiety. My chiropractor is actually really good at what she does and recommends that everyone get an x-ray before she starts adjusting them to see what the problem is (this is not to boost sales or whatnot, she literally charges $40 for the X-rays). So this was actually my second go around at this particular place. She is a longtime family friend of my aunt and when I was younger had terrible back pain (developed early). My mom took me to see her because she wanted to prevent anything bad happening later on. Currently, my x-rays are the same as they were over 13 years ago. I had an atlas (c1) subluxation and axis (c2) subluxation which is essentially your bone slipping out of it's correct position. The curve in my neck is almost non-existent as it was 13 years ago as well but I didn't pay it much mind. I figured it just caused the neck and back pain.

    Fast forward to about a week ago, I go to my doctor telling him essentially "thank you for all your help but I'm still feeling pretty crappy". He asked what was up and I gave him a written list of symptoms (my memory is shot so if I had to recall it from memory I probably couldn't). A few of the things that alarmed him was that exercising made my brain fog worse (I felt more spaced out and detached right after instead of feeling good like I'm supposed to) and something else that I can't remember right now. He said it sounded like I wasn't getting enough oxygen to my brain. To anyone else that probably would be alarming but to someone that has had 0 answers in 4 years, it was FANTASTIC news. I took this news and did more research.

    I found out from my doctor that inflammation in other parts of your body can cause inflammation in your brain. I have rheumatoid arthritis and have had it since the age of 11. Yeah, sad. But I though it was weird that it would effect me over 11 years later after my RA diagnosis and to this extent. I'm 26 now for good measure. RA diagnosis was at 11, anxiety/brain fog started at 22, and I was diagnosed with the subluxations at 13.

    I went back to my chiropractor after that appointment and she gave me some literature on how the a1 subluxation can effect your body. Google "atlas subluxation symptoms" or something of the like and holy moly you're gonna be shocked as to what can happen to your body when this bone is moved. It basically pinches the nerve and cuts off the single to the nerves from there down (it's literally the first bone in your vertebrae) and your body tries to keep functioning but doesn't get the correct signals so it kind of goes haywire and does whatever. This also causes your fight or flight system to go crazy (panic attacks out of nowhere for me). The lack of oxygen to the brain can also cause... DING DING DING! Brain fog!

    So I did a little test. I went to the chiropractor for 4 days straight and was going to go so for two weeks (they're closed on the weekends and I took a day to rest since I also get massages before hand and too many can make me sore). I started feeling better. My headaches and head pressure were lessened, I could do homework assignments (and college work requires SO much reading), and I was able to go out with friends (something that was really difficult to do because of the detached feeling.) This week I haven't gone yet and it's been 4 days since I've been and I feel like crap again. Not as bad as when it initially started but back to the baseline crappy feeling. Brain fog is just making me feel bleh, head pressure is back, and I am pushing forward.

    Like many of you, it started out of nowhere for me. THIS I can remember like it just happened. It was THAT terrifying.

    I was sitting in a computer chair in my living room with my fiancé and our close friend. They made a joke and I started laughing and tossed my head back (it was really funny) and when I brought my head back up, my heart started racing. I thought I got light headed and tried to shake the feeling but it wouldn't go away. I walked around the block a couple times thinking there was some excess energy (it felt like I had too much coffee except I had stopped drinking coffee then since it made me sleepy). Nothing helped. It kept getting worse and I thought I was dying so I was rushed to urgent care where the doctor pretty much hinted that I had done some drugs but didn't want to admit it because my mom was there. I was an adult at that point and am actually very open with my mother but he said "yeah, everyone says that", and I realized he wasn't going to help me. He sent me home with an antihistamine and Zoloft. When I brought the antihistamine to my doctor, he was so shocked at the dosage for it that he ran out of the room to make sure there wasn't a mistake and literally came back saying "he was trying to drug you." Not very reassuring and I stopped trusting doctors after that, refusing any and all medication. I even told a pushy doctor once that "if you give me medication, I'm going to sell it!" That ended that.

    So here I am now. Lots of money for testing later and somewhat of an answer. It wouldn't hurt to see a chiropractor. I've heard stories of people who got that bone reset and after almost a decade of exactly what we're experiencing (years of testing that tells us nothing, weird symptoms, and anti depressants that do diddly squat), had IMMEDIATE relief with all of the symptoms lifting right after. The experiences vary though. Worth looking into and you won't waste your time with all of these doctors and unanswered questions. With my subluxation being there as long as it has, it can take upwards of a year to correct. I have opted to do it the slow and steady way since some people who have had the bone reset by a specialist sometimes get worse. Like I said, the experiences vary. I feel like with my mini experiment I have made some progress and will continue to go as long as I can. Please feel free to ask any questions that you have!

    • Posted

      This post is pretty freaking significant. 

      My brain fog symptoms started *after* I injured myself in a way similar to how you described. I tilted my head backward and hit the back part of my neck against a wall.

      What were your MRI results like? The one I had about a month and a half later turned out negative. 

      I also had some X-ray work done, but nothing out of the ordinary showed up.

    • Posted

      I haven't gotten an MRI yet. My doctor is working as we speak to get my insurance to okay it (not holding my breath). Who did your X-rays? I read about a patient who had a subluxation but it was waved off by her doctor as nothing. Her chiro was the one that assured her that this was causing her problems. Chiropractors specialize in bones (amongst other things) essentially, so they do a better job of finding things like a subluxation. Even bringing this information to my highly intelligent doctor didn't really seem to strike anything in him and he's typically very adamant about finding something that could essentially help me.

    • Posted

      Wow! That's crazy! I related to this post as well when exercising which they tell you to do, I'll feel more spaced out and dizzy! And also when I laugh, I don't even have to throw my head black, if it's a good laugh I get sooo light headed! I'll def have to do more research thanks!

    • Posted

      I'm almost convinced my doctor is spot on with thinking its lack of oxygen to the brain or inflammation. Everything going on points to it

    • Posted

      I think I have brain inflammation as well. It's the same kind of feeling you get when you're extremely tired right? Except it doesn't go away. It creeped in after I had stayed awake for 42 hours writing a research paper for a college class. A week later it was full blown. I had anxiety and depression before but it definitely made it worse. Does anyone else feel better for a few seconds when you apply pressure to your forehead? Does anyone know how to decrease brain inflammation? I had blood tests done, is that something that will show up on the tests? Thanks to anyone who answers. I also noticed a correlation, mostly everyone had endured some kind of stress before their symptoms became evident.

    • Posted

      My doctor has done extensive blood work and when I told him I was having the brain fog and whatnot, he actually ordered me an MRI and referred me to a rheumatologist. And yes, I feel like I'm really tired all the time. Like I wanna go to bed.

    • Posted

      Brain inflammation isn't visible in the blood when there isn't a bacteria or virus involved (at least not with the conventional test via a GP). If you google on 'brain inflammation' and 'natural remedies' you will find lots of information on foods, supplements and herbs which can help in reducing brain inflammation.

    • Posted

      That's interesting. In most (if not all) brain fog cases, the MRIs return negative, i.e. there is nothing wrong with the "hardware" of your brain.

      To answer your earlier question, I did my X-rays at a hospital after a referral by my neurologist.

       

    • Posted

      Definitely check out a chiropractor! They should be of more assistance than a neurologist.
    • Posted

      Yep I'm def going to get checked out for this, mine started a little while after an head and neck injury aswell, my MRI results were fine my blood tests were fine, they keep saying it's GAD, my psychologist is the one who tested my lymes cause I was bitten by a tic a few weeks prior to the symptoms starting also did some blood test for adult pandas all negative, this literally explains all my symptoms so I thank you for this information and will really be thanking you if this turns out to be what it is but for the first time in over a year I have some hope that I can make it go away def gonna be a life changer, my biggest issue now is not getting my hopes up but I have consistently said my anxiety is cause by my symptoms and not causing my symptoms and for the first time I may be able to prove it

    • Edited

      Today was my first adjustment by a Maximized Living chiropractor and WOW. So much information. In the past I've asked other chiros whether or not my spinal issues were causing my symptoms and I'd get a "I mean, maybe" and when you're paying for the visits, you kinda want more answers. A typical day for me is waking up, feeling kind of groggy, eating almost immediately because I can't tell when I'm hungry until my body reaches the point of FEED ME NOW, and dragging myself through the day for no reason really because I'm not working right now from all the issues. I also have a sort of baseline anxiety and all over pain that lingers always. After my first adjustment, I could move my shoulders around pain free (my neck and shoulders are ALWAYS killing me; it feels like the day after a workout), I could bend and reach things without pain in my neck, I could, and this may sound weird to most people, hear things better around me IMMEDIATELY after he places my c1 in the right spot. I usually hear things in the same room as if they were outside or on tv or something. Everything sounded like it was in the same room. I hadn't eaten because I didn't have time but usually like I said I can't feel the hunger building anymore. On the ride home, my stomach started growling which was a refreshing sensation for once. I also got sleepy like I wanted a light nap. With my anxious feelings, I couldn't nap if I wanted to and if I did, it wouldn't end great. I got home, made a nice breakfast, and went to bed without a problem. I usually have to coax myself to sleep on top of everything else. I can't just lay down and go to sleep. My father woke me up a little over 2 hours later when my mother in law arrived at my house and I realized I slept without interruption for the first time in YEARS. Even at night I'm waking up almost every hour on the hour. The chiropractor told me I'd feel a difference tomorrow, but today is going really well. My x-ray discussion is tomorrow (whoopee!) where he will explain my issues. Yesterday when I went initially to do my consultation, he had told me to wait 5 minutes and he'd look over some X-rays I had done earlier this year. 30 seconds later he came back in and said "I don't need to see anything more" and proceeded to ask me if my chiro told me I had scoliosis to which I said no but I knew that (from childhood, although my chiros never mentioned it to me during my current course of treatment). This guy explained all of my spine issues (and there are quite a few) and has more to tell tomorrow! I'm nervous but excited and hopeful as he said my body is reacting well to the adjustments and I'm still fairly young, but too young to be living with these issues at 26.

      Sorry for the long post but as a long time skeptic of anything ever helping me, I'm now a hopeful believer that we can fix this fast!

    • Posted

      Thanks for the update Breezy, it sounds very promising! I'm curious if the effect will last, and if you can get rid of all your complaints, I hope so!

      Please keep posting!

    • Posted

      It means a lot that you have taken the time to share you tale. Thank you!

      I have gained some new insights I will explore. Thank you so much!

    • Posted

      Hey man, how you getting on 9 months Down the track? Very similar story to mine!!!

      Hope you are doing well bro

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