Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!
Posted , 640 users are following.
The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!
Here’s my tale:
About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.
Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.
The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence. I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.
For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .
I have scoured the message boards and found a few people suffering from the same, but without answers.
I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.
PLEASE OFFER INSIGHT! I will be so grateful J
Sincerely,
Taylorsaurus Rex
54 likes, 1428 replies
cassy23461 TaylorMason
Posted
Hey Taylor,
I know this is super old but just wondering how things are. If you found anything else out besides what was previously stated.
I've felt this way since it happened one day at age 15. I'm now 25. It's just gotten worse especially after a rough relationship. It's so bad now that I literally can't feel any good emotions. Happiness, joy, love, excitement nothing. Im numb constantly and I have a temper I never had ever before. That in itself will make a person go crazy. It's the worst part of it and making everything else way worse. I'm saying this because no one on here has really brought this up so i was wondering if you were experiencing this also. Or if anyone else was. Thank you.
dan70750 cassy23461
Posted
Hi cassy I've had the same thing for 2 yrs now still doing tests. But when I'm feeling at my worse my temper is so short everything irritates me . I was proscribed zopiclone half in the morning and half in evening this worked for about a yr then they stopped working and I was taking far to many and in the end I stopped them I'm currently on 200mg antidepressants and valium still not my self but takes the edge off . Doc said could be chronic fatigue syndrome. Another doc said it could be my brain being starved off oxygen as I have sleep apnea ( stop breathing in my sleep) next on the list is a sleep test as I've just had my adnoids out as there were to large . I haven't a clue what's wrong with me but I miss being my old self . I'm 38 by the way if u were wondering.
rebekah2222 cassy23461
Posted
I completely understand! Mine started when I was around 14. & now I'm 21.. I feel like it's gotten worse as well, probably Bc I'm just tired of it with no answers. But I get very aggravated and mad too without really knowing how mean I'm being. Simply Bc I'm stuck in this fog and not remembering that it's not THEIR fault. I'm a single mom of a 4 year old and have had to grow up fast and learn a lot. So I also understand about going through tough relationships Bc I've been there and still having to figure stuff out every day with my little one. It gets very challenging VERY, when I have to work and take care of my daughter without another role knowing I'm in this fog that won't break loose. & also I'm going to school couple classes at a time to better myself. But you're not alone and I'm glad that I found someone that started it as early as me the age of 14-15 and around my age now Bc I'm just as lost as you are.
david53669 TaylorMason
Posted
Hello Tyler,
I am posint on this 3 - year old thread only because you recently commented on it.
I, too have been suffering from similar thing. It's been about 2 years and symptoms are getting worse as time passes. Symptoms are:
-Emotional numbness (aka depression)
-Visual changes (after images, trail vision, visual static)
-tinnitus
-headaches/ head pressures
-anxiety
-slow thinking
-tiredness
-brain fog
It is very annoying and I've been believing my illness to be "Depersonalization/Derealization". However, as you all may know, doctors do not prescribe to that diagnosis. They all say it's anxiey/depression. I realize there is really no point of naming this illness. Whether it be depression,depersonalization, anxiety, therapeutic methods seems to be similar and medication for them are very similar, as well. So, I am giving CBT (cognitive behavioral therapy) a try now. If this doesn't work, I will maybe go with antidepressant/CBT combo. Have you had any success with either of them? or any other treatment?? Please give me some advice.
Before I close this, something worthy? to mention is... that I had done alot of psychedelic drugs in the past (LSD,shrooms, salvia, etc etc) and had some spiritual experiences and have seen ghostly/demonic beings even when I was sober. Really strange thing is that, recently my mother and her sisters went to see a really well known spiritist to ask some stuff about people around them. Apparantly, the spiritist was telling everything right about their relatives when only their first and last name were given to her. It really surprised my mom when she had mentioned my name, the spiritist started to freak out and started saying I have depression, problem with my vision, headaches, chest aches etc and they were being caused by 2 demons that are in my body?? When my dad heard about this later on ( he did not go because he does not believe in those things). It surprised him as well. BTW, my mother and aunties were inquiring about more than 15 people, and she only reacted so violently about me. Furthermore, my story was not told to any of my aunts prior to this, because my parents thought it to be shameful thing.
I wrote the last paragraph because I thought it was interesting how I had "spritual" experiences in the past and had seen some bad entities myself and some spiritist tells my mom that I have demon oppression on my body and im having symptoms because of it.
nicostia67798 TaylorMason
Posted
have you looked into multiple sclerosis it sounds a lot of like things I went through when I was younger it may not be but blood work is definitely not going to find it sometimes anymore I can but sometimes it takes a spinal tap. Perhaps one of those audio visual type MS. It measures how fast and slow you can hear and see.
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ragnor TaylorMason
Posted
Hello,
I just registered to comment on this.
I have the same symptoms since some years ago, but just intermitently.
Usually it happens to me after a night out, but it lasts always about 2 weeks, when it slowly fades away. It feels like some kind of depersonalization. I wouldn't say it's cfs, as I don't suffer any physical pain or suffering.
I can see myself interacting more "automatically" with people. Usually they don't even realise, and I can socialize with them. But as I said, I feel it's "automatic", like I'm not thinking what I'm doing or saying and I'm just watching what my body is doing. It's really complicated to explain.
Does somebody from here found a reason for this and a solution?
I changed almost all my habits and diet, but it still persist. I see that this can happen even if I'm not drinking, and sometimes I'm not sleeping at all for a while and I'm not experiencing this. After all this time I still couldn't find the 'trigger'.
MyAllegory TaylorMason
Posted
33cody MyAllegory
Posted
Going on anti depressants isn't the end of the world. If you have high blood pressure you'd be meds and prolly wouldn't think twice about taking them, so many times people think of this as it makes you seem weak or something but I honestly think this is like any other ailment. We just won the s**t lottery and have this issue and have to take meds, others have way worse going on. We're sick, not weak there's actually a website sick not weak, google that and it'll come up , if this forum has taught me anything it's that there is so many people out there dealing with this we have to change the stigma we have about this in our mind, if we just look at it as what it is, a health issue, instead of the typical taboo dark cloud that might help how we feel over all. I immediately thought I mentally broke when I started having these issues and I'm a former athlete who prides myself on being mentally stronger than most so at first it tore me up but the more I read and hear, it's literally just like I have high blood pressure or something if medicine will help I'll gladly take it forever if I'm back to my normal self again. Def a well worth trade off for me. To make a long story short, look at it as an ailment and medicine will help simple as that
Tangledx TaylorMason
Posted
Exactly how's I'm feeling. Every single day. Literally wake up thinking why do I have to feel this way every damn day, I just want to be able to feel "normal" just once the least! I find that if ive had a stressy day it feels a whole ton worse and I'm usually around my big family so when my siblings children come over the house is unbearable. I prefer quiet rooms.
I just hope but one day I won't feel this brain fog, dizzy headache like- out of this worlds feeling. Its been going on for over 2 years and it's affected my mentality. I can't think clearly, speech is getting worse, memory is becoming worse by day, can't express verbally because I end up having that ditziness forgetful moment. Ugh. Sometimes don't even make sense 🙄🙄
dan70750 Tangledx
Posted
Hi just an update on my meds that the psychiatrist put me on maybe u can suggest them to your doc they are working and I've just had the best week for a very long time actually felt like my old self . Maximum dose of sertraline which is 200mg I also take a very low dose of diazepam 4mg in the morning but not sure if I need these. Sertraline is an antidepressant he thinks I might have chronic fatigue syndrome and this is how they treat it . Need to go back in a few weeks to c how I'm getting on . Hope this helps I no exactly how u feel.
Ashley025 TaylorMason
Posted
Could be Anxiety causing it. Depression cause fatigue. Brain fog, depersonalization. 🤔Yeah check these ones out. 👍
Ashley025
Posted
Get diagnosed by a mental health professional. Brain fog, depersonalization, maladaptive daydreaming, all sound similar.👍I still don't understand the difference especially between brain fog and depersonalization.😑 Good Luck everyone!
Ashley025
Posted
Get diagnosed by a mental health professional. It could be depersonalization, brain fog, maladaptive daydreaming. They are similar. Especially brain fog and depersonalization. Good luck everyone.👍
davidcupoftea TaylorMason
Posted
Hi everyone.
I've been suffering from this now from almost 3 years ago.
It has not been solved yet (forehead pressure, inability to sleep, poor memory, inability to retain knowledge):
This is what worked:
-SLEEP. I dropped from school. I started trying to sleep as i used and as I needed to. In order to sleep, use:
-MELATONIN. The best thing to sleep. Currently I'm taking about 15 mg of fast delivery melatonin and 6-8 mg of prolonged liberation melatonin.
-TURMERIC. If you manage to get 8-9-10-12 hours of sleep, you're on the good road. Now I can sleep about 7-8. My simptoms are still not solved. Turmeric has helped me regain some of my brain. I cannot focus completely, but I used to not be able to even watch TV. I was not able to read or do anything meaningful. Horrible. I was so dumb that I don't even cared about my inability to do anything. In fact, I relate to quite a few comments in this thread. So, one of my best findings:
I discovered that turmeric helps. I was able to 'eat' about 48 grams (1.69 ounces) of turmeric per day during some time, but take it slow, as it damages you (for example your stomach), and it can make you sick from anemia (it makes it harder to absorb iron, so take vitamins for that while you eat turmeric). It helped me a lot. When you eat turmeric the pressure on the forehead increases, but your cognitive abilities improve after. It does also improve sleep.
-EXERCISE. I run about 9 miles a day, and that helps a lot with the symptomps too. Increases the blood that goes to the brain, and it helps you with sleep too.
-SEEK HELP. You need all possible help. You will need 5-6 years probably to solve this (I don't really know if it's solvable, hopefully it is). My mental performance has gotten better in three years, but i cannot do anything else in life aside from focusing every single day in order to make sure that I'll sleep OK that night and that the next day I'll be able to get up from bed (which I'm not always able to do).
-VALERIAN, URTICA DIOCIA (NETTLE) AND PASSIFLORA INCARNATA (PASSION FLOWER). those help with sleep.
-FOLIC ACID (I recommend you eating legummes) and B class vitamins.
-AVOID TOXICS. Parfums usually worsen everything. Try to avoid them.
-IMPROVE YOUR DIET (vegetables, avoid onion or garlick)
-DON'T GIVE UP. THIS IS THE SADEST, HARDEST PROBLEM TO DEAL WITH. MY BRAIN HAS IMPROVED, BUT IT SEMMS THAT I NEED MORE AND MORE THINGS TO KEEP IT AS IT IS, AND MAKE IT SLEEP EVERY NIGHT. If I don't manage to sleep the hours my brain needs, I'll only go to the previous situation, and that is bad, really bad.
If we don't act, I am very worried that we will end up with some kind of dementia. Please, be strong, keep the courage in. I know you deserve it. Convince someone how big the problem is, how big your brain has been damaged, seek help in your parents, tell the doctors that you're gonna end up on the streets, with an empty space inside your skull. Be dramatic if you need to, this is no joke. We need a lot of help, because this is not easy to reverse, and it won't do unless you put all your efforts on it.
After periods of anxiety and stress, brain damages. There are parts that are 'easy' (with help of turmeric, exercise, and good sleep) to recover (by easy, i mean three years, for example). But the sleep... That's f*****g hard. My brain doesn't know that it should sleep at least 8 hours per day, so I have to make everything possible myself to make that happen. And when it does not happen, you just go run your 9 miles (the next day), eat your turmeric, and pray god that next night you'll be able to sleep.
I'm seeking new ways to fall sleep in hope that I will continue to recover from this, hopefully something does work.
God helps us. Best luck to all of you.
Blessings.
PS: Please, if someone manages to solve this problem, I would be very glad to hear how did he/she overcomed it. Specially if there's something that is effective in making your brain sleep as it should. My need for melatonin, valerian, exercise, and all that has just increased in this years. And I cannot cure myself if my brain doesn't know that it has to rest in order to recover itself.
PS2: Sorry for the tone of the post. I just didn't managed to watch all this people thinking that they're gonna die, or that they will end up with some kind of dementia. I come across this thoughts too, not too long ago, when I was suffering from anemia besides this problem. It's a really tough thought, and a very depressing one. So keep strong please. All my love and my support from here. Doctors have little clue about this. We should try to spread awareness.
Ashley025 davidcupoftea
Posted
Hey David
Thanks for your comment I agree with you it's not healthy to be stuck in our head all the time I think it can lead to dementia. I saw someone who had dementia they were always lost in their mind it saddened me to see them like that. Anyways Thanks for all the advice.👍
God bless you too
davidcupoftea Ashley025
Posted
Thanks Ashley.
My point was that, in some cases, the symptoms get worse and simple daily tasks become more and more difficult, until the point that you no longer become an independent person. When you're that bad, you don't even realize how bad it is. Now that I'm cognitively better, I just feel so impressed and embarrassed (?) that I let my brain turned into that, that I wouldn't like anyone to experience the same thing. So, to all those people who are suffering this, please, take care. I wish I could really help them.
Ashley025 davidcupoftea
Posted
I wish I could help people too but I'm in the same place as them. Good thing you are better now.👍Its hard to control our mind so don't be ashamed.
Good Luck David
Take Care💜
davidcupoftea
Edited
edit:
Dont use turmeric. I think i will get a digestive cancer from it, i took too much.
You need to be prescribed any antidepressant (like sertraline) or antipsychotic like olanzapine or imipramine (they have been found to help with dementia and memory loss: https://news.cuanschutz.edu/news-stories/researchers-find-two-fda-approved-drugs-that-curb-symptoms-of-alzheimers-disease
That's all. Good luck