Deep ear pain, loss of taste, dizziness, brain fog

Hey guys, just wondering if anyone has experienced any of my symptoms and what has been diagnosed, I've been to 13 different GP's and 2 ENT's (ear nose and throat specialist) also seen a neurologist. I'm so sorry for such a long post, but just wanted to explain every symptom, in hope someone may have experienced it and has some knowledge.

I'm 28 years old. Female.

It all started in April with a right ear ache, felt like a deep burning pain, I thought it was just an ear infection and it will clear. Moved into a new house in May, still had the ear pain here and there. Decided to quit smoking in April and start vaping all was going well until mid July I woke up with flu like symptoms, runny nose and dry cough, sore throat, headache and nausea, I started to loose taste on my tongue that day, I thought it was just the flu, everything went away by the next day except the loss of taste on my tongue stayed (when I say loss of taste on my tongue, I can't taste anything when it's on my tongue. I have to swallow and as it goes down the back of my throat I can somewhat taste it, smell seems to be fine. Just the taste is gone) I thought it was vapers tongue? So I tried some of the home remedies on google with no luck, a week and a half later, I woke up during the night with what felt like food poisoning, nausea, dizziness, sweating, shivering, light headed, everything felt like it was moving like seeing cars driving past me made me feel so much worse, I had to just focus on one object that was completely still, next day all the symptoms went away except the dizziness (dizziness was more inside my head not vertigo) , so at this point I still had no taste and now the dizziness had stayed, I went to the doctor for a complete blood test, everything came back normal besides low Vitamin D, I had the vitamin D injection, no difference, it's now been almost 7 months since I've lost taste and the dizziness started, it's constant 24/7... throughout the 7 months the dizziness eased off slightly and I just had a strong brain fog where I can't think properly or concentrate kinda like no Mental clarity, I stopped vaping as I thought maybe that was causing it, no difference, had an MRI with and without contrast on my head and neck, everything is perfect, I was told it might be my wisdom teeth so I've had all 4 impacted wisdom teeth out. (They have hit my nerve and now I have no feeling in my chin or bottom lip, made no difference with the dizziness and loss of taste) all together I've had about 18 different blood tests, urine tests, blood colture tests, everything is normal, I've had an EEG on my brain, all normal, hearing is perfect according to the audiogram, ENT has said my ear is fine inside and is very clean. The pain I get in my ear is very deep inside sharp pain, I've noticed lately it seems to be triggered by wind I think as it only really comes when I'm outside. Also when turning my head to the left I feel a pull down the right side of my neck, very randomly I do get a slight ringing in my ear and feels like my hearing is very far away, but since the ear pain started in April, ive had a popping noise in my ear everytime I yawn or open my mouth a certain way, kinda sounds like a popping noise, I thought maybe it has something to do with my eustachian tubes so I've started taking flixonase nasule drops at night, too early to notice a difference yet. I also experience some cheek pain and tenderness around my Temple all seems to be on my right side. Also when laying down in bed I sometimes get a floating feeling.

Just the last week as I was standing in the bathroom my eyes flickered to the right and back from a google search it sounds like nystagmus. It's only happend twice in the matter of a minute or 2. But since then my dizziness has came back bad again and now sometimes it feels like the floor is moving under me and my eyes are a little blurry. Laying down and turning my head left to right doesn't really make any difference in the dizziness but when I sit straight up the dizziness gets worse for a minute or so then goes back to the same constant dizziness. Sorry again for the long post but just trying to cover everything in hopes that someone may have experienced the same as me and has any knowledge of what it could be because it's terrifying not knowing what's going on.

Now because doctors can't find anything they're starting to blame it on anxiety, I know anxiety can cause brain fog and dizziness, but it isn't an explanation for my ear pain and loss of taste.

0 likes, 1 reply