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Defeated

Posted , 11 users are following.

margot34956
margot34956

Hi everyone I hope you are all doing as well as can be.

I am so upset today as I have discovered my GP is not taking care of me.

initially in Nov last year I was diagnosed with PMR, put on 15mg pred, for 4 weeks then 12.5 for 4 weeks, now on 10 since 9th Jan.

I have had one blood test, that was to diagnose PMR, a CRP test, result 75 inflammation.

I have been told by GP to start cutting down the pred 1mg every 4 weeks, starting 26th Jan, until I am off them.

No further GP visits, no more blood tests and I have never been offered a bone density scan.

Through this forum, thanks so much to everyone! I realized I should be having a blood test, so I phoned the clinic and asked for one. I got the results today and the CRP is at 14. I have had no contact with the GP regarding this result.

Now I am feeling quite low and defeated, don't know what to do next!

 

1 like, 17 replies

17 Replies

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  • sandy08116
    sandy08116 margot34956

    Posted

    I would take Eileen's advice, look for another doctor in the practice. The first doctor misdiagnosed a 'mini-stroke' and sent me home with medications for that. Fortunately for me, I didn't believe him, neither did another doctor in the practice - who sent me to a diagnostic unit at our local hospital and GCA was diagnosed.

    Surprised you haven't seen a rheumatologist. My GCA is monitored by a rheumatologist and my GP is there for backup. 

    Don't feel defeated, Margot. Be strong and in control. Cheers

    • margot34956
      margot34956 sandy08116

      Posted

      Thank you Sandy! yes I will take Eileens advice and seek another GP. I am so glad to hear you didn't believe your Doctor, that could have been disaster for you. No, no rheumatologist. hopefully my new GP will

      Thanks to you all I can stay strong and in control!

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