Delayed pressure urticaria

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Can anyone advise me. I have had a 24 hour blood pressure machine fitted today about 3 hours ago, and the machine is causing me to swell and causing hives up the arm the machine is attached to. Do I take it off as I’m gutted after having 3 sessions of xolair injections and having been hive free until today. How do I go about it? I have been having extremely High blood pressure and I know they need the results but I’m worried the swelling will spread to my face like it has before.

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  • Posted

    ha ha thanks .. how are your hives doing now.. ?? is the Xolair helping you.. it took about 6 before mine really started to help.. and now with my 8th around the corner i still get a couple a day.. 
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    • Posted

      I took the silly machine off as I couldn’t bare it anymore. The xolair injections had been doing well but since yesterday I did get hives all up my arm and my body swelled. It doesn’t help that it’s been rather hot here as heat and sun is one of my triggers. The sun  will be a true test if the injections are working. I’ve kept out of it the last few day. But have to say I’ve been pretty much hive free since having them but also the weather had been cool. We just seem to be having some crazy hot wether here at the moment. Also found that I’m having really bad joint pain but it’s only started since having that pressure machine fitted which was going off every half an hour. I’m having my third done Monday so will see my dermatologist. The doctors here are clueless about this illness and just say sorry I don’t know what to advise. Same old thing and tell you to keep taking your antihistamines. But I can’t complain I was so bad last year so there has been some improvement. Amazing how something so silly can start it all up again. Do you have to pay for your injections? We get a course of 6 months which are free and then accessed to see if maybe I need more. I’m hoping that as quick as it all this started it will end at some point. I’ve had mine for a year and three months but it does scare me when I hear some people have had it for absolutely years. How long have you had this and what is your diagnosis. 
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  • Posted

    Hi Michelle

    Yes we have to pay for our shots if we dont have insurance here.. I do have it so mine are all paid for.. good thing as one shot is 5549.00 which is insane i think..  I get more hives when it is humid and hot or i did.. In June it will be one year since i have had these hives and there is no diagnosis. I have seen four different doctors and allergy specialists and none of them know the reason and say I may never know and there is no way to say when they will .end.. I have had lots and lots of blood work done and i know ppl who have had skin tests etc and still no answers which to me is so very frustrating.. I am dealing with bad joint pain in my hands along with numbness and tingling and terrrible pain in the bottom of my feet.. I use essential oils for some relief but need to be more consistent and see if it goes away.. supposidly these are side effects which may or may not go away or may or may not get worse..  the pharmacist said I have to judge if the hives are worse than the side effects and decide that way... I was so miserable with hives head to toe right now I am willing to put up with these in hopes they go away.. it is scarey when I get face hives as i end up in er with throat closing but have not had that since i went on xolair.. I also carry an epi pen with me everywhere now..

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    • Posted

      Have you had a pressure test? It’s obvious for them to diagnose the chronic urticaria but they put a pen shaped instrument on my back by pushing against the skin then drew a circle around the dot. If it stays there for so long it then says it also delayed pressure urticaria but again it’s all the same treatment. It means I struggle carrying bags tight clothing etc all causes me to swell on top of the hives. I’ve asked for an epi pen many times but my doctors refuse one because it’s nit an allergy as such. Which is scarey when all my face/lips swells and I have trouble breathing. I also had asthma so when it gets like that I go into panic mode and have trouble breathing. It makes much more sense to have an epi pen and a lot safer. 
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    • Posted

      Yes I have had a pressure test and yes anyplace that my clothes are tight i get hives.. I agree with this type of hives I feel more comfortable having an epi pen.. one of my allergy dr did not want me to have it because of my high blood pressure but two other doctors told me i should have it with my angioedema.. I especially want one once we start to travel a bit..
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