Delayed pressure urticaria

i also have a change in toilet habits, bloating, my stomach is very tender to touch. i was diagnosed with non alcoholic liver disease due to medication causing it. i dont know how you have cooed having this horrible illness for ten years. i have found myself struggling just having this for 2 and half years. recently been diagnosed with fibromyalgia and waiting rhumatoid arthritis. Do you find not many professionals are unable to help as not many doctors are familiar with this diagnosis? or even some of the medication for example dapsone. i have read about changing my diet by taking gluten out and actually does sound like good advice so will give this a go. thank you so much for reply. i wish there was a support group that we could go to, but it seems to be a rare illness.

We are just Guinea pigs when it comes to medications. I've taken various meds and believe most if them have led to my 'other ailments'. I also have non alcoholic liver problem called primary binary chongolitis. oesteopinia (brittle bones) Arthiritis and the new ones are that I have a cyst in my stomach and connective tissue disorder. However havent got fibromyalgia although my twin sister does. We both have this crap. People think this is just a few rashes it's not, with delayed pressure urticaria it affects everything you do. It definitely affects your psyche and the way you think in having to constantly think about trying to minimise or avoid a flare up but in reality you can't if you want to be normal. I used to have a flat stomach now I'm so bloated it has affected my confidence. I know that's shallow but just feel like I'm sitting around collecting new illnesses all in the quest of trying to relieve the pain and discomfort of this debilitating disease.

i totally agree with you. When its summer i stay out of the sun but i think its more the heat and humidity rather than direct sunlight. ive gone from a confident outgoing person to a hermit that stays away from most social or public events with the fear of looking like freak. people stare when my face swells and look at your skin like you are contagious. i used to work with domestic violence, training social workers and police officers. now i stay home with anxiety and pain. when i go to my gp they just say sorry we have never heard of this i cant help. so you just left until you next consultant appointment. Then you feel like you cant talk to anyone and feel totally isciolated from the outside world. ive only ever met one person with this illness when i was in the hospital and i was so excited to talk to her but unfortunaly never bumped into her again. Do you find you really have to push for help when you know there are other problems that we know are related to this condition? its not a coincidence that most of us have liver problems, stomach , bone etc. i do wonder what was the cause of all this also? i dont know about you but i went through a very stressful incident a few months before my first outbreak. i do winder if that was a trigger.

You are right about your theories of the trigger point and it is stress/trauma related. As I stated I have a (identical) twin sister. She got it first so I was aware but not knowledgeable. I was spring cleaning my house and the next day I was smothered in wheals. I knew straight away what it was and thought its started, as me and my twin normally get the same things. Doctors do not know about this condition so there is no point going to them. Have to be a specialist in this area. I am a patient under Dr Grattan at St. Thomas hospital London uk and this will always be experimental. it's a very complex condition to treat as there are different types. I suffer more in winter as clothes affect me incl footwear. I was a civil servant (working in a job centre) and was made to feel like a leper when told to cover up my unsightly lumps and bumps. Took a redundancy as my sick days were going through the roof. At swimming people wouldn't go near me thinking its contagious. Life changes dramatically. I had a back operation about 8yrs ago and my urticaria dpu came back worse. (trauma to the body) in recovery I was smothered all over just like when it first started. Stress i would say is definately related as I've noticed I'm at my worse. I've even kept away from people inc family and situations just to avoid it. It's difficult emotionally to cope with this so although like you I'm a bit of a hermit I still defy this illness like a rebel. I go out and try and enjoy myself knowing I'm going to pay for it later and I do. It's like being a kid doing something naughty and you know you're going to be punished but it was worth it because you enjoyed yourself. We have one Life and we got to squeeze out as much of a life as possible with or without this condition.