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Hi everyone,

?I have been suffering from fibromyalgia for years but was only officially diagnosed with it about 2 months ago. Before that I had been wrongly diagnosed with Joint Hypermobility syndrome. I am having a hard time mentally and don't know what to do. I don't know how to approach the topic with my parents also. When I was diagnosed 2 months ago I was put on a small dose of Naltrexone hydrochloride. I am just wondering if that could have anything to do with my mental struggle. Also, does anyone else take this for sleep? Would love to talk to someone else taking it

?Thanks smile 

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6 Replies

  • Posted

    I take temazapan as a sleep aid. What are you taking for pain or depression?  One of the side affects of fibro is depression. I am currently on Norco and Zoloft    My Norco has been stol n from me the past two months so I’m not doing very well today
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    • Posted

      Thanks for replying Judy. I am actually not currently taking anything apart from the Naltrexone but am in a lot of pain and will be seeing my doctor soon. I can imagine. I hope the next while gets better for you 
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  • Posted

    I've had it for approx 12 years. Past 6 years have been bad and last 4 years very rough. I too was told it was joint laxity. Took all kinds of antidepressants - amitriptyline, Sertraline , Pegaba , sleepimg pills but nothing helps. Only makes it worse. But don't worry, how you manage yourself now will decide how the syndrome is gonna affect you later.

    Do some light exercises everyday

    Don't take any ad's

    Do some stretching everyday

    Make sure you get good sleep

    Don't stress on anything

    Try Coq 10

    Get a massage every week.

    I ignored it hence I'm homebound now.

    Fibro can fought and cured .

    Take care

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    • Posted

      This was very helpful, thank you s67707. My doctor keeps reminding me how important exercise is and I am currently trying to focus on that, even though it is hard with such fatigue. I will definitely try all of those things. Thank you again. You take care too 
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  • Posted

    Hi Claire, Don't worry about the low dose Naltrexone, it is recognised as a good treatment for fibro. I actually want to try it out and am hoping to persuade my doctor to let me give it a go.  It's not at all surprising that you are suffering a bit mentally, after all, you have been diagnosed with a debilitating, life long condition that will affect you in many ways going forward. I was depressed as a combination of some life events and being in pain all the time, I'm not at all surprised that depression is a 'side 'effect' of fibro. Who wouldn't be depressed by being in pain ALL the time!

    The good news is that the depression has gone/receded after taking fluoexitine (Prozac) for two years. Now I feel much better mentally and I have found a few supportive friends who understand my fibro and how it affects me. I have also found a way to tackle the negativity and bad feelings I get when other, less understanding people (I won't call them friends) imply that I am 'lazy' or making it all up!

    I too have joint hypermobility syndrome, which made me a good gymnast in my youth! I actually believe JHS and fibro are connected and that the JHS leads to fibro as you get older. I cant watch gymnastics on the TV now as it just makes me cringe and wince thinking about the pain they may be in for later.

    I take Amytriptyline and coedine for the pain, but I cant honestly say that takes the pain away. I have also recently started taking CBD oil as drops under the tongue as lots of people are currently recommending this. It hasnt effected the pain but has taken away some anxiety I was feeling.

    There are some good books available on living with fibro, maybe you could look into one of these to help you tackle the subject with your family. Good luck and I'm happy to chat anytime. Are you based in the UK?

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    • Posted

      Hi Lesley, thank you for all your amazing advice. I have found since being on Naltrexone that I am sleeping a little better. I would definitely recommend it.

      ?That's great news. I do have some supportive friends but others who don't seem to get it at all.

      ?I didn't realise that there was a connection between them at all.

      ?I'll definitely have a look for some books.

      ?Thanks again for all the great advice. And you're so good to offer to chat. I am based in Ireland  

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