Depressed after 12 months of constant pain .
Posted , 6 users are following.
I had surgery 18 months ago on a herniated disc which was causing ces, after my op I felt so much better everything went back to normal. But 6 months down the line the pain returned now I'm in constant pain, I walk with a limp, and I'm fed up with being fobbed off with more pain relief that isn't helping.Do any of you have any advice? I know the nerves take time to repair but surely I shouldn't be in this much pain. My doctors seem very disinterested and it's making being a singal mum to 3 children very difficult.
0 likes, 12 replies
keith94082 Mamanene
Posted
It's a shame but there is a thing called neruomodulation. That can work look it up. I was on a two week assessment in July 4 on the course have had the trail version for 2 weeks. My ces is so extreme I have not been put forward. Guys and st Thomas's pain management unit take people from all over the country it's a ago rate of success they done 250 last year and 170 it work on. Try
srgsng25 Mamanene
Posted
Mamanene srgsng25
Posted
I have sat crying to my doctor, he said no to the injections, I think that he thinks it's in my head too, but I can't cope like this I feel like a terrible mum as my 6 yr old does way to much for me. I've also begged for another mri but the NHS being the way it is he's refused. Maybe going private is my only way forward!
srgsng25 Mamanene
Posted
I know i really wish the Dr's would listen to us i wonder if they forget that we know our bodies better then them sometimes. I wonder if you back re-hurinated my 2nd surgery was just over a year after my first one and i started to have sciatic pain 5 months after surgery. mine came on as a dull ache for me though I am here in the state so its a little better than NHC. you said you bladder was messed up? what way retention or incont? mine is major incont issues unless i have huge amounts of pain then i am retraining and we all know what that means LOL
After each surgery i have gained 50 to 60 lbs too so i am depressed about my weight and finally working with my VA "vertens ADmin Dr. and in a weight loss support group to help me loose the weight. I had to get cleared by a PT for that program"
Mamanene
Posted
Bladder isn't actually to bad other than getting infections quite often ! I've lost weight and I walk everywhere as advised but still no let up , I feel like I've re herniated but like I said they don't seem interested. Just wish they'd start listening.
olivia_iri28127 Mamanene
Posted
Go to A&E, don't take no for an answer
Mamanene olivia_iri28127
Posted
I told them I'd do this he said go ahead they will send you back to me! At my wits end .
mike23430 Mamanene
Posted
Your Doctor should have suggested by now that an Epidural Steriod Injection
(ESI) would be your next step to supplement pain killers, it`s helped me and should offer relief
to you, but its only a quick fix not a permanent fix. Good luck hope this helps..Mike23430.
Mamanene mike23430
Posted
Hi I have asked for this injection his answer was no its a short term solution. I have managed to get an appointment with my ces nurse I'm hoping someone takes some notice of me. I know my own body and it doesn't feel right.
maryanne45 Mamanene
Posted
Hello,
I hope you are getting some relief now? I am a few years in post surgery. I have had success in getting some quality of life back through finding what works and also using ideas suggested by American pain doctor Forest Tennant for 'intractable pain' and listed under 'arachnoiditis' but absolutely reflect chronic Cauda Equina. Some things include wearing a spinal brace at certain times, exercises and also medication protocols. It is the closest thing I have found for information to guide how to manage 'Chronic CES' which he calls 'Cauda equina infammation'. There is a public service website called ' Arachnoiditis hope . com' and links to the arachnoiditis handbook which is very useful to CESers I think. It sounds difficult, being a mum. Best of luck.
keith94082 Mamanene
Posted
This happens a lot like me my back is in a terrible mess but they are disinterested. I keeping pushing. I felt ok after the operation for urgent decompression. I was left for 6 days I have a lot of damage I have a colostomy and a ieal conduit wee stoma stoma. I had a lot of thing I would not have had like I at to have my bladder removed a colostomy revision 2 hernia operation my scar is right up the middle I can't walk with out my stick. My after care over 9 years as been terrible I sued and won as they had no excuse. My disc not only come out they had touch and fused together then broke off. It's been hard. I need some support in the back I was told a few month back that all my new problems were cause by no support put in at the time of my 1st operation. The pain will more the likely stay with u. Ask about neromodlation that would help u I feel.guys and st Thomas's do this in their pain management unit .
Mamanene keith94082
Posted
I've finally got through to my doctor he sent me for an mri and found another slipped disc which is nipping my nerve! 8 months I've been on that themy I new something wasn't right! Currently still waiting in treatment.