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Derealisation in CFS

Posted , 15 users are following.

antand23
antand23

I have had this for over three years. I understand it is commonplace in CFS/ME...the brain going into protective mode when the body is stressed. Has anyone found a way of dealing with this symptom....which is probably made worse by anxiety about being ill?

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  • Iamgracie
    Iamgracie antand23

    Posted

    What is desensitization?

    My problem is that I don't feel well enough to get out and about. I went to my son's graduation last weekend and it was fabulous. I had horrific pain, but the adrenaline kicked in and got me through. Ever since I got home, I feel worse than ever. He's home visiting and I feel like a lazy bum for being in bed. I get up and go downstairs,, but I feel better lying flat. The pain pulsates throughout my body. I was diagnosed with Lyme in 2003 and within 6 months was very ill. I'm better, but have lost my job, friends, church ability to be up out and about, and on top of it all, my family believes I am not sick. They think it's just depression. Ya, I'm depressed, and not helping by being encouraging helps and I have to work on building borders from my family. Not at all what I want.

    Anyone else confused by fatigue and depression and feeling like life is lost and cannot get back on the horse however much I try. Cognitive and cfs keep me from work. I could probable think better if I didn't have the fatigue. The pain is manageable, the fatigue is not.

    • vicky86416
      vicky86416 Iamgracie

      Posted

      Did they check you for Pots? Can be caused by Lyme disease. Read up on it there is great fb page with tons of info on dysautonomia/autonomic dysfunction. The problem is findinfpg a dr who is versed in it.
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