Posted , 2 users are following.
I was diagnosed with DERMATOMYOSITIS last year is a autoimmune diseases that has been driving me crazy and I need someone
Who has the same desease to tell me how they do it....this weakness is getting worst the medication. Every thing is really bad.
0 likes, 3 replies
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katederm1 ayde2016
Posted
Hi,
I just responded on this forum to another person's questions about derm. I have skin involvement, not muscle involvement, but have learned a lot over the past 10 years. Feel free to reach out to me.
It is a frustration illness!
ayde2016 katederm1
Posted
Hello , thank you for responding my frustration right now is not been able to swallow my food, I'm losing so much weight, that is getting me worry..
katederm1 ayde2016
Posted
Maybe you can make high protein, high calorie smoothies. They can meet your nutritional needs if you can swallow them.
Good luck!