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Dermoid cyst...don't be fobbed off

Posted , 5 users are following.

e48717
e48717

I had terrible pain for months, going back and forward to the doctor. After tests, it was discovered that I had a dermoid cyst on my right ovary...I was put on a 9 month waiting list for the cyst to be removed.  At the time the cyst was apparently 7cm x 7cm.

I suffered horrendous pain, with agonising shooting pains, pain in my back and sickness.  I was unable to sleep and it was affecting my work as I couldn't sit for long.  However, every time I went to the doctor I was fobbed off with "cysts shouldn't hurt".   I was getting through a packet of Ibuprofen a day, this went on for months.

I reached a point where I couldn't stand the pain any longer (and believe me, I have a high pain threshold). I visited the GP and demanded they contact the hospital to bring my appointment forward.

Long story short (and not to scare anyone), when my cyst was removed it was 14cm x 14 cm, full of hair and particles of teeth and was about to burst.  The cyst had been leaking poison into my system (so no wonder I felt grim).

Ladies....don't be fobbed off. We know our own bodies. If you are suffering with a cyst, speak up to your GP. Those who shout loudest get treatment.

 

1 like, 8 replies

8 Replies

  • chica
    chica e48717

    Posted

    how many times have i been examined and told it was all normaaal.

    for a mo.ment you are relived but then you think wait a minute, i'm doubled up in pain.

    by that time your getting frog marched out of the docs office as you've had your 4 minutes. still clutching your piece of paper you'd written all your questions and never

     got to ask them.

    and you know its his coffee break because you can smell it and thats his priority.

    how cynical do we become as we get older.

    the thing about cysts, fibroids., endo its not our fault.

    yet we get looked at as though we are wasting their precious time.must stopnow. feel as though i've turned into my dad.!

    • Fairy28
      Fairy28 chica

      Posted

      Your post sounds so similar to my experience in the beginning, how awful and how awful for every other woman out there going through the same thing. I wasn,t listened to either until I insisted on a scan, it really is a total nightmare isn,t it. How are you doing now ? My op was 18 months ago almost and I am still having problems and think it will be like this forever, if my cyst had not got to the size it was before surgery things might be easier for me now, x
    • chica
      chica Fairy28

      Posted

      after along time with summit in your gzzards that shouldnt be there, i think your body does its best to function.

      when that obstruction is removed, its bound to feel different.

      i read somewhere after a chronic problem, its the nerves in your body that are out of cync and still send messages to your brain that your having pain.

      my gynno did not take into account that i'd had a CT scan before my op.

      in fact he denied he had it on his screen.

      but i knew he had as i'd been to the records office to try get a photocopy of results.

      another thing happened over a year ago.i took myself for a MRI.

      my gynno disregarded it as i'd got it myself and paid for it.

      listen to this, even though it was the same MRI clinic as the hospital used.

      the CD part hasnt been looked at even now despite me asking 6 different gynnos to look at it.

      in the interim time i took it to a private 'internal medicine ' dr to look at.

      1'000euros later he sent me for bloods, fecal., bio whatsits and said there was nothing to show on my MRI.

      so how come i've had this polyp removed and i still think theres another issue in my lady gizzards.

      no wonder we all turn into cynics.

      and another thing' we want more lady gynnos !

      ,

    • e48717
      e48717 chica

      Posted

      know what you mean Chica, I felt like I was banging my head on a brick wall....just trying to get someone to listen to me.

      Oh, and my gynae was a woman and she was dreadful. Kept telling me that "you shouldn't be in pain with just a cyst". Well excuse me for going against your text book!!!! I felt fobbed off and that she didn't understand or care.

      I've got to the stage where I don't care if the gynae is a man or a woman, as long as they listen to me and DO something - not just tell me to go away and take paracetamol.

    • Fairy28
      Fairy28 chica

      Posted

      Uuuggghhh for goodness sake poor you - it just goes on and on doesn,t it, what do we do, feels like we are a nuicense and a problem, at the end of the day all we ask is for a proper diagnosis and treatment, surely thats not so hard so why is it ! I feel like I can,t keep going back to Dr as I feel like oh its you again with your imaginary problems ! thats how I feel, but people do have more than one problem and even after treatment other things can crop up, seems like I am always gonna feel like a washed out, knackered old menopausaul person always in pain, achy and fed up, such an effort just to get up in the mornings and get out the door, not fair is it.
  • Fairy28
    Fairy28 e48717

    Posted

    How many times have I heard this kind of story. Similar to me, time and time again went to GP with pain bloating etc, told was constipation, middle age, weight gain etc - months amd months later eventually had scan, 20cm plus cyst, surgery a week later with 3 and half litres fluid removed. 18 months later still having problems it,s been a nightmare and still is, when are we going to be listened to and taken seriously, we are not stupid and we know when somethings not right.
  • louise55264
    louise55264 e48717

    Posted

    Yep I'm the same been a year now, fobbed off with IBS, told cysts don't hurt, had to go private to get the scans I wanted. Still they are taking their time but finally down for a laproscopy though got to wait 12 weeks. I know it's my cyst that was found on CT scan causing the problems but they still shake their heads in doubt just because its small, and are now suggesting its endometriosis. I just am sure I will be right in the end but we will see. My Aunt just sent me an article by Chloe Lambert in the Daily Mail 27th Jan, all about misdiagnosis. It's just like reading my story, this is happening all the time! Wish I could show you it. Makes me cross I wish I could think of a way to bring this to someone's attention in medical circles. I've been talking to ladies on this forum and also the IBS one for some time now and can't believe how many like is there are. My only reason for staying on the IBS forum now is to redirect women to this forum, as so many are told they have IBS when they actually have gynae problems. I know this is only a cyst page but they are better off discussing their problems here. Gynae issues shouldn't be so misunderstood in this day and age surely!
  • amy65421
    amy65421 e48717

    Posted

    Wow I'm so glad you put this I've been fobbed of for almost 13 years now. ..I have a possible dermoid cyst and possible endometriosis I'm in agony Mey next app is 12th of march
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