Dermoid cyst surgeon didn't remove!

Thanks Nicole! Yes, I completely agree about removing organs and understand that the ovaries do lots of other positive things for your body. My left ovary is apparently completely normal, so I wondered whether it would really affect me if just the right one was removed or damaged? I don't know... I don't want a hysterectomy just don't want to be in pain, nauseous and anemic! I have tried tranexamic acid and mefenamic acid too but they haven't worked for me either! Glad to hear that the tranexamic acid is working for you, though. If the doctors can't come up with anything else, I might see a dietician or herbalist to see if anything else could help. Appreciate your advice!

Sorry to hear you're suffering too Shelley. It's difficult isn't it? You don't want the pain but don't want to go through with having it taken off, if it doesn't help and could cause more problems! Who'd be a girl?! Hope they get to the bottom of it! Keep me posted, if you find anything that helps!

Thank you Clare! It's just so frustrating ;( all I want is to have a normal life again! Most of the issues have been going on for at least 2 years and Drs have put it down to appendicitis (which was removed 2 years ago) but I've been admitted for pain more times since it came out than I was before! My bowel stopped working and I've been following low FODMAP diet since then along with laxatives to help! But in last six months the gynae side of things started to get more severe, heavier bleeding (soaking through 4 cloth reusable towels in an hour while wearing a mooncup!) spotting between periods and pain during/after intercourse etc... I just wonder if it's a combination of the issues with my bowel and the tiny little cyst that's causing the pain?

Hit reply before I meant to! I really hope you get to the bottom of things too! It's rubbish being a girl! 😂 I'd rather never have an operation after how my body reacted to having my appendix out, but when the pains at it's worse I'd be tempted to take it out myself! It's keen to hear from others if they've had issues with a cyst as small as mine (2.5cm), as I think it must have something to do with all the recent issues, but unsure about whether it would account for the severity of the pain!? Wishing you all the best and hope you get answers! X

Hi Shelley

Less than 10 weeks ago I had a major operation, right ovary out, total hyterectomy and sigmoid bowl resection due to Ultra sound and MRI showed signs of severe endometriosis. My bowl opens more frequent when I am eating healthy, cutting sugary and chunk food. If I eat chunk it affects my bowl motion. I havent had any major incident since operation though I feel some discomfort when I pass urine as they took my pelvis too. They found my right ovary was damage , couldnt find the tube it was stuck to the cyst less than 10cm. The cyst stuck to my sigmoid colon which explain my constipation on menstrual. If you have constipation during mentstrual that gets worst by the month. I suggest you tell you GP or gynae to check for any obstruction as the cyst can attach to organ including colon, bladder causing issues with the organ. I suggest to try to eliminate the sweets and chunk food as they made pain worst. I did eat healthy since I was diagnosed mid last year and it made a big difference to my pain and what they found after my surgery wasnt as bad as what the MRI showed.

I am 44 years old and didnt want to have anymore children so I agreed with the gynae when he suggested to have hysterectomy. Not to mention lots of prayers got GOD's involvement in everything which add to everything turns out well.

I hope this help.

 

Thank you for your reply! I hope you're doing well after your op! I'm waiting to get another MRI so they can get a better look so I'm hoping that it'll point them in the right direction! They're just so reluctant to operate because they are not sure that the cyst is the issue (which I totally appreciate would make them reluctant) but also because I'm 29 and haven't had children (which I'd like, but not as much as I'd like to be,and feel, healthy!) I keep getting admitted because of the severity of the pain, but because my obs are generally ok (i.e. Don't have temperature etc) they don't ever seem too concerned despite me being in agony! I just know it's not normal to be in so much pain! My bloodwork is always ok-ish, usually low in iron/borderline anaemia and my inflammatory markers are high, but nothing majorly indicative of what's going on! I've just started feeling like I'm wasting their time, but all I want is not to be in so much pain! It's so frustrating?! Thank you so much for taking the time to reply-I just appreciate hearing from others that haven't perhaps had the most straightforward, textbook examples, so I have things to potentially discuss with the dr when I see them next!

Sounds horrible, Shelley. Sorry to hear that. Do you think there could be any scarring that could be causing the problems? If it all started around the time of your appendicitis and operation, it could be linked, perhaps. Hope you manage to find out and get it sorted before too long.

Hi I had a dermoid cyst on my left ovary. The ultrasound had the doctor thinking it was on my right ovary. I went in on last Monday to have it removed because I did my research on the symptoms and it matched the symptoms I was having such as weight gain dizziness light headed fatigue and constipation so I proceeded with the doctor suggestion which was surgery. My cyst was the size of a football and wrapped round my ovary 3 times so my ovary had to removed was well but I tell you this since I had the surgery my body feels a lot better. The only problem I had after surgery was gas and a little pain but it gets better day by day.

Also those type of cyst can grow

Thanks for your suggestion. I'll mention that when I next see a doctor and see if it's something they would consider! Feel like I've hit a brick wall, so good to have some other possible solutions! Glad it's helped your sister. And I know what you mean about not taking it out whilst they were in. I got the feeling that the surgeon was in a bit of a hurry that day too, which didn't help...! Thanks for the advice!

Clare,

Based on iron and inflammatory markers I wonder have they done a CA125? All issues were high for me and I had endometriosis.....

No, I've not had a CA125. Do I request that at my GPs? From my symptoms, the surgeon thought I'd have endometriosis but he didn't find any during my op. (Although my op was very rushed and the nurse even told me that she'd not had any lunch, as the surgeon had got through his morning list so quickly that he was moving his afternoon appointments forward. I was the last morning patient, so I just hope he wasn't rushing so much that he missed something! I also question if this is part of the reason he decided not to remove the cyst...!) Sorry to hear you've got endometriosis though. Hope you are managing ok.

The GP can order it, it's just a blood test. It was the first indicator there was something wrong gynecologically for me. Mine was very high and my Gynecologist told me I had cancer but there are many causes for it to be elevated. One is endometriosis which was my issue, not cancer fortunately. Unfortunately, mine was so advanced by the time it was diagnosed eveything had to be taken.

I would recommend getting a second opinion. Sounds like the surgeon was not vested in finding the root of your troubles. Very unfortunate. Since GPs tend to dismiss gynecological issues I think a second set of eyes on the problem would be the best next step.