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Dermovate caused burning

Posted , 5 users are following.

marion68182
marion68182

I'm 75 years old and have recently been diagnosed with Lichen Sclerosis.

I was prescribed Dermovate ointment and also Ovestin.  I used  them for 5 days and then everything burned more than before, when I looked I was red raw with tiny blisters on my vagina. I phoned my doctor and was told to stop all creams for a week.  It's been 3 days now and I don't know what to do with myself as I'm in so much pain especially when I urinate. I'm using ice packs and drinking lots of water to try and help the burning. 

Has anyone else had to stop the treatment and what did you do instead. I feel my GP doesn't know that much about this. Thank you.  

 

1 like, 6 replies

6 Replies

  • Guest
    Guest marion68182

    Posted

    Hello Marion, I am so sorry you are having such a difficult time and are in so much pain! From the little I understand about LS it sounds like a gynocologist or a dermatologist would know more about this than a general practitioner. Have you been referred to one or the other? If not, maybe call their offices and ask if they can treat LS before going. I am sure one if not both of these specialists can provide you with some medication and help. Call today!! You should not have to suffer without help. Take good care and let us know how it goes!
  • wendy62425
    wendy62425 marion68182

    Posted

    Hi Marion

    Im so sorry you are going through this!  Are you sure you do not have UTI??Did your GP check your urine? sounds like a possibility and perhaps you should see a specialist...GYN.

    please keep us posted!

    Wendy

  • marion68182
    marion68182

    Posted

    Thank you for the replies   I have to be referred by the doctor to see a specialist as unless your a private patient in the UK you can't just phone up.  I did have two tests for a urine infection over the last month as I thought it was that but it's definitely Atrophy of the vagina   Unfortunately it's so hard he re to even get an appointment with your own GP.  So I have to wait until after Easter to see my doctor.  So much for the National Health system.  

  • catherine32075
    catherine32075 marion68182

    Posted

    HI Marion

    I have had VA since August (7 months). I am 53. I am in the UK (Yorkshire). I have had trouble finding a GP who is well informed. I went to see a specialist in Leeds (privately). It cost me £100 but she really helped me. I am using Vagifem and it is helping. I don't think using nothing will help as you need help to moisturise and restore things..dryness will continue if not and soreness worsen. Don't hang about waiting for GPs who don't always understand. I did and months went by without proper treatment. There is a web site called menopause matters with lots of ladies on there in the UK who know about things and treatments and have lots of knowledge. Older ladies too who will be able to help. I have used it a lot. You sound so sore and in pain, I truly hope you can get some help soon.

  • barb_v
    barb_v marion68182

    Posted

    I am 70 and was recently diagnosed with Lichen Sclerosis. I also was prescribed Demovate and also had a very bad reaction to it. Burning worse than before. I did a lot of research and realized that most doctors know very little about LS. I found a doctor who specializes in LS and it took me 2 months to get an appointment but I finally saw her and she said that I do not have LS but that I am suffering from Atrophic Vaginitis and she is treating me with a hormone cream which I am hoping and praying will finally solve my problem. I hope my story helps .....
    • marion68182
      marion68182 barb_v

      Posted

      Hi barb v.   I was so interested in your reply as I saw the nurse practitioner yesterday instead of my doctor and she said I should have only been on hormone cream (Ovestin) at first as probably mine is Atrophic Vaginitis.  One of the doctors I spoke to last week said he'd never heard of a bad reaction from Dermovate and I knew he must be wrong.  So much for doctors understanding this problem.  Anyway she said not to worry about LS as I should get relief from the Oestrogen cream.  Can you let me know if that worked for you and how long it took as I'm getting fed up having to stand up to watch TV as I can't sit for long as it's too painful and burning. 

      Thanks again.

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