Describe your chronic pancreatitis pain

hurts when you lay on your back for too long (well pretty much ANY position for too long).

caughing, sneezing, laughing, taking a deep breath, can drop me to me knees at times.

pain that is steady in both rear flanks, but strongest in the rear left.

pain in middle and middle left of of chest at or just below bottom rib

sever loss of appetite, and eating solid foods feels like swollowing gravel.

constepation and backed up gas to the point of wanting to die. 

laying on my left side is much less painfull than laying on my right. (laying on my right side feels like my pancreas is dangleing or supporting some of its weight and pulling/streching.

i have been diagnosed with chronic pancreatitis, w uninfected necrosis, and 2 pseudo cysts (1. just under 2 inches, the other about 1.5 inches Diameter)I just turned 31 on the 11th of June, heavy drinker/ and habitual non eater for about 8 years. also smoke 1 pack of marlboro reds per day

also most doctors can tell if you have pancreatitis via a blood samle, but not 100% of the time. if there is still stronge evidence pointing to the pancreas, it should surely show on a CT scan. If both of those show no signs. then its likely severe ulcers or even a pinched nerve

Mark have you ever gotten a sure diagnosis? My husband's symptoms match your exactly. He's been suffering with this for over 6 yrs and it is getting worse. Doctors haven't helped so far.

Hi All,

I am new to this forum.  I have an IPMN cyst on the neck of my pancreas and nearly two weeks ago I had a new procedure (being trial around the World), done on my pancreas:

Trial of Endoscopic Ultrasound Guided Radio frequency Ablation of Cystic Tumours of the Pancreas 

https://clinicaltrials.gov/ct2/show/NCT02343692

Since having this procedure I have been getting that annoying mild burning pain in the area of my pancreas and this pain  is worse after eating, hot sweats and nights sweats wake up with pain in the front on the left sign again around the pancreas area, I have been on antibiotics, chronis pain under my right shoulder blade, feeling nausea and I have no fever/temperature.  I have been off work since the procedure. I did email the specialist who did the procedure but had no response so I am seeing my normal GP tomorrow about my symptoms. Is there a particular test ie blood I should ask for?

Any advice would be appreciated.

The number one thing is when I eat. Every meal feels like I just ate a 12 course meal. Bloating, that you can actually see the distention. I hate to eat.

Mark, I've had both Acute and Chronic Pancreatitis.

Cause for the Acute was calcified Gall-Bladder, which necrotized part of my pancreas, and calcified parts of the duct between the pancreas and the intestine. And, of course, necrotic pancreas means I'm now diabetic.

It was about 3 years after the Acute I started exhibiting Chronic. 

Currently, with chronic, under the care of a specialist, I'm slowly but surely controlling it with diet.

I was told by a physician to go on the "Low Fat, Low Residue" diet, which appears to work like a charm! 

Residue is basically anything that stays in your intestines, like roughage, bran, oats, salad etc. 

I consume as little fat as possible, close to zero, and zero alcohol.

I eat frequent small meals, things that will digest quickly in the stomach.

Too much food will trigger an attack.

I can't eat uncooked veg or fruits. I can eat lean protein.

For example at breakfast I eat plain white toast with nothing but jam, non-fat yogourt with some applesauce, skim milk, and coffee.

But so long as I stick to it, the pain stops, and while I initially lost weight, now I'm holding.

Supposedly, when I have my next ultrasound, my pseudocyst will have reduced in size.

I live in hope!

hello dear people,

I've been having a pain on the upper left side of my rib cage, I can touch my rib and feel the pain, like it's my muscle, I massage it and feel the pain just there, it's no deep weird pain, i suffered from mononucleosis last year, and still struggling with postviral symptoms, I had enlarged spleen and the pain was different at the same side.

as a physio I'm concerned that it's of visceral origin, pancreas's pain irradiates to the left hypochondrium.

I have no pain when I lay down or on my back, but i've been having yellow stools for a while and been struggling with loose stools too.

since I'm so afraid I've changed my diet a bit, never smoked , been drinking maybe 4 or 5 times per year, so hardly a drinker, I've added more spinach, broccoli, cabbage, berries and some antiinflammatory spices.

I want to know if there are any valid exams! I don't believe in doc's opinions, and I surely don't want to waste time! I'm constantly nervous and worried. 

how do you describe your pain, is it deep or is it your muscle?that hurts.

 

Hi I'm 24 and I had my gallbladder taken out in January 2017 but before I got it taken out for a couple years I would have what I was told to be gas pains and for a while gas x worked but eventually it didn't and in January of 2017 i went to the er with excruciating pain in my upper stomach through my back they gave me morphine and it only lasted less than 30 minutes. Anyways they found out I had pancreatitis, gallstones, and stenosis of my bile duct. They sent me to Houston and put a stint in my bile duct and a couple days later took out my gallbladder and I stayed for a few more days after that and a week or 2 later they took out the stint in my bile duct and for months at home I ate right didn't drink alcohol or anything but the same pains as before would come back I lost 20lbs (which was a good thing I know weigh 150) but I was still hurting randomly I tracked everything I ate before if have a pain and nothing adds up so I started eating like I did before whataburger and all and I'm still having my pains (upper stomach through to my back) sometimes I can throw up and feel better hot baths pouring water on my back helps but other times I have to take 3 hydrocodone to make it go away and it can still lasts for a couple hours and my Dr's really don't know because all my blood work of fine the ct is fine the ultrasound is fine I did an endoscopy and the tested for hpylori and it came back negative I'm going in this morning for an ERCP and I honestly don't think they'll find anything idk what is happening

Hello. I am new obviously. I am curious to know if anyone experiences a cramp like feeling in the middle of their chest, going all the way to the left side of their rib cage. Again, it feels like a cramp. Fullness also. I go for an ERCP within the next 3 week's... This is all driving me absolutely bonkers.

I appreciate any and all responses.

My pain goes from mild to moderate to very severe.  When it's severe I can basically do nothing but lie and wither and squirm in pain.  It gets so bad, I can't even sleep.  Then it is usually a week in the hospital.  

I haven’t yet been officially diagnosed with chronic pancreatitis, but I think I will be in a few weeks.  About three years ago I developed a dull pain in my right side just under my rib cage.  By the end of the day it creeped into my back so I went to the doctor and my blood test revealed I had pancreatitis (lipase 460).  It wasn’t super painful but I went on a liquid diet and it cleared up.  About 5 months later it started up again but first I would eat certain foods and end up throwing up.  Then the pain in my back set in between my shoulder blades it feels as if my back muscles are very sore but it just won’t go away.  I ended up going to a specialist and they did a ERCP and inserted a stint in my pancreatic duct.  This procedure gave me severe acute pancreatitis (lipase over 7000) and had to be in the hospital for 5 days.  Since then I get pancreatic attacks about 2 times a year.  The pain is mainly between my shoulder blades and get more intense when I eat.  I did have genetic testing done and I test positive for the SPINK 1 gene mutation.