Desperate
Posted , 8 users are following.
Hi all, I'm desperately needing help and after scouring the Internet can find no explanation for my horrific symptom.
I was first diagnosed with ebv/glandular fever 4 years ago and although I was unwell initially, I recovered into a semi normal state over a period of weeks, quite honestly never really the same though, I'd get annoying symptoms that would come and go, but for the most part felt pretty well and was able to work as normal etc.. until a year later and I got pregnant, I got extremely sick but recovered in 4 months. it was all pretty horrible, extreme fatigue and feeling like I had a hangover everyday for 4 months, then it went. I was left with chronic low level fatigue and never fully recovered to pre ebv levels, but for the most part again life was normal.
fast forward to 2 months ago, I get all of the same symptoms again after a traumatic event and think ok, here we go again. the first two weeks of illness felt like before, sore throat and terrible flu-like symptoms like when you are first coming down with it, then something changed. I felt a strange kind of anxiety feeling one day and then couldn't concentrate on anything, then I couldn't sleep, like my nervous system was revved up, like having speed!! this went on for 4 days without any sleep, I was climbing the walls. then extreme night sweats. Over the weeks it has changed and now for around 8-12 hours of every day or so, I feel like I'm being strapped to an electric chair and current passed through every part of my brain and body. it is utterly unbearable!!! when I'm in one of these episodes I feel like I'm never going to get better and I'm climbing the walls suicidal. it's total unrelenting torture. I get breaks, but during the breaks I get loads of other symptoms, mental weirdness, detached from reality and freaking out, night sweats, insomnia, racing heart, violent shaking from the inside out, sore throat, dry mouth, weird white patches on tongue, pain in neck, zero appetite, lost 2 stone in weight, dry cough that makes me gag constantly. I'm an absolute mess, I'm in total survival mode. I have a 15 month old who I cannot care for at all, she's in full time childcare and my partner does absolutely everything else while I just shake in a dark room. it's so extreme. Has anyone out there had symptoms as extreme as this?? ive dealt with this virus for 4 years and never has it done this to me before. I should add that i tested positive for active infection 9 weeks ago. Please help, I don't want to leave my daughter without a mum!!!
0 likes, 44 replies
saba2012 martine25248
Posted
i've read your guys post how you relax, well i have my dogs, 4 of them, if i wouldn't have them i would not get out of bed, they are the ones who keep me positive, i call them my "therapy" dogs, also i started to watch tennis on tv, never watched tennis in my life, for me is so relaxing, stopped watching the news or anything that's depressing since there is so much negativity in the world anyway right now, do a lot of praying, watching the bird in my back yard and really slowing down the pace of life, we all deserve it who are going through ebv, i also think that what we eat is so important in recovery, was thinking to maybe start a journal what symptoms are popping up every day, what is good, what is bad, what i ate, i've noticed my work really drains me mentally, i work in an office with no windows, fluorescent lights and is really damp in the office, maybe even mold is there, so i'm sending a big hug to each of you, reading all your comments makes my day
matthew63675 martine25248
Edited
MY wife and I were at st george island this weekend and she was collecting sea shells handling seaweed and has had a horrible reaction. I don't know if it's parasitic . need help asap
vitoo martine25248
Posted
Hi Martin,
I had these symptoms for over 2months too. It's just freaking me out, sometimes I'm thinking it's not EBV or some kind of cancer... extreme fatigue , sleepiness, neck pain, dizzy head, weird vision, low temperature 37.2C, weight loss, anxiety, mood changes.