Desperate for answers, is it Anxiety, Fibromyalgia and CFS or something else...
Posted , 4 users are following.
At this point I have hit a wall trying to fix my self.... a long story but I will sum it up in a timeline.
2018 and before never experienced any anxiety depression or panic attacks
2019 had constant diarrhoea, advised its Anxiety, take Escitalopram
2019 Jan to March Citalopram SSRI - stopped cold turkey
2019 April after 15-20 A&E visit in regards to my diarrhoea and stomach issue, admitted to hospital, at this had gone from around 94kg to 73.4kg, I had lost allot of muscle mass and was skinny like a stick, I am 6'3"
2019 May possible diagnosis of NET tumour in appendix
2019 May I ask my primary care GP to test for helicobacter pylori test - it came back positive with a high number of bacteria - started my triple antibiotic treatment
2019 May advised by Secondary care that they will proceed to remove the appendix once my triple antibiotic treatment had finished.
2019 June my diarrhoea has stopped!!
2019 July Appendix removed
2019 August given the all clear that it was not a cancerous and I was discharged from the gastro surgeon back to the gastroenterologist specialist
2019 Sept gastro discharged back to GP
*** During all the above I developed so many issues with my body ***
Balance and Gait issues
Weakness
Tiredness
Low mood
Panic Attacks
Shaking and trembling
Sleeping issues
Internal tremor - horrible
Brain zaps
Headaches
Myofascial pain syndrome
Sleep starts
Pressure in the head
I have seen ENT, Neuroendocronologist, Gastroentrologist, Neurologist and had the following
Head MRI
Neck MRI
Thorax CT - Check spread of cancer
Abdomen CT - discovered NET
Full body PET Dotate Scan - Full body cancer detection
over 80 different blood tests - I even had one where they had to make sure the blood is tested immediate within 1 minute!
Finally I was sent for surgery.
2020 to present - now that everything has been taken care of from my gut perspective I have been left with a whole load of issues!
2020 - 2021 Sept Escitalopram
from the most problematic to the least:
I cant spend time with my kids 5 year old and 8 year old - they are always complaining that I dont spend time with them 😦 and this is the reason why I am searching for an answer.
Sleep starts / Hypnic jerks - this only happens when I exert my body before sleep, exercise, DIY etc
Brain Zaps Zapping sound - If I accidently have my arm under my head or ear whilst lying down
Extreme muscle ache if I do DIY
Super sensitive to Noise/Smell and Touch - when someone is talking loud it feels like someone is hitting my eardrums!
If walk more than a 10 minutes I have head pressure
I have balance and gait issues
Muscle stiffness throughout the body
Always pulling muscles and the pain lasts for weeks
If I have a hot shower I get this over whelming feeling of unease shortly after, as if something is happening with all the muscles in my body
When I pass stools I have a similar feeling throughout my muscles
Stomach pains
Naturally with all the above comes edginess, anxiety, low mood
All of this is an absolute nightmare, I have never been like this, all this started after my stomach infection! I am desperate to find answers...
My final diagnosis is that I now have Fibromyalgia and CFS.... 😦
Is there anyone out there with similar issues? has someone found a solution?
0 likes, 12 replies
LoobyM Guest
Edited
hello @8umblebee wow thats quite a journey you have been on. A lot of your symptoms sound like Fibromyalgia and given the trauma of your surgery and the toll it has clearly taken on your mental health too, it all points to fibro.
The sad news with a fibro diagnosis is that there is no "solution" It's all about managing your symptoms and doing the best that you can each day to keep moving.
I woke up one morning with widespread pain. I had done no exercise, I was fit and healthy and had no reason to experience the aches and pains I was having. That was 16 months ago along with lots of blood tests and an MRI.
Fibromyalgia is horrible, it's misunderstood by the ignorant, its invisible and its unpredictable.
The best advice I can offer you is join some fibro forums, do some research online. Keep moving, exercise every day, light stretches, some weights if you can, aerobics. Stay hydrated and watch what you eat. And do your best to remain positive as some days are a tough gig.
Guest LoobyM
Posted
I have just started Homeopathy Treatment.... its like a quest to find a solution.
@LoobyM what are your symptoms?
LoobyM Guest
Edited
where to start? in no particular order or priority:
muscles spasms
muscle twitches
paresthesia
sensitivity to noise
difficulty swallowing
widespread pain
carpal tunnel
low mood
tremors
muscle stiffness
clonus
jerking
the list goes on!
I have an EMG scheduled for the weekend.
Guest LoobyM
Edited
jeez its everything I suffer from, I totally understand what you are going through.
Good luck with the EMG, did your GP arrange this or the Neurologist?
I have started taking Rhus Tox 30c a homeopathy treatment, i have high hopes but lets see.
I have started to get Deja Vu a lot, its freaking me out lately.
Please let me know how your EMG goes?
Guest
Posted
@LoobyM do you suffer from Anxiety?
LoobyM Guest
Posted
Its awful isnt it and scary at the same time. It was the 2nd neurologist that referred me although he claims he is only doing it to give me reassurance that there is nothing more sinister going on. I need these results so badly. The rheumatologist who diagnosed my Fibromyalgia was so uninterested and sent me off with a sheet of paper. You're just thrust out to try and find stuff out for yourself. I am on HRT and have just started on Sertraline 50mg. Also take Levothyroxine 50mg and Cyanocobalamin for my b12. I will be sure to let you know of my results. Are you in the UK?
Guest LoobyM
Edited
Yep I am in the UK, I had a particularly bad day today, eventually it was Diazepam! I don't tend to use it often but a 2mg tablet relaxes my muscles and pain goes away for day or so.
I guess I over did it with gardening yesterday, I work in IT and spend most of my day at the desk.
often I don't have energy. my body just feels stiff. Its a relentless research battle to cure my self knowing that I wast like this,
I also have bowel issues, IBS and now I cant tolerate sugars or carbs, they make it worse.
I saw a Rhumatologist in UCLH London, who ran some bloods and did a MRI of my thighs, found nothing. told me its Fibro.
LoobyM Guest
Edited
your story shares the same parallels as mine and many other fibro sufferers. For me I woke up with widespread pain one day and things have just got worse with so many other symptoms in the mix. The sad thing is, there is no cure, there is no meds we can take. Its all about symptom management. Like you I have a good day, yesterday for instance. Straight away I go back into wonder woman mode, trying to fit in all the things I cant do when I'm having a bad day. I cleaned the house, walked 10k, cooked dinner for my girlfriends. This morning, I just wanted to sleep, I feel so dog tired. Its all about learning to pace, something I haven't quite mastered yet.
For me, I'm not convinced this is Fibromyalgia, I fear something nasty, which is why I want the EMG, as that is the test that can rule out the nasty stuff. Like you I've had many bloods done, MRI of brain, neck and spine and all clear. Yet my symptoms persist.
Yes, in answer to your question, I do suffer with anxiety, more so the last few years. My health anxiety since this pain started has gone through the roof. This is why I started on the Setraline and boy has it helped me.
If you look in the Fibro forums, most of the sufferers yearn for their healthy life back. It's such an awful syndrome with very little support and understanding from the medical professionals and more upsettingly our loved ones.
Guest LoobyM
Posted
@LoobyM how was your EMG?
LoobyM Guest
Posted
hi 8umblebee, it went ok thanks. covered in bruises! the guy who did it said it didn't show anything sinister. I have a telephone consultation with the neurologist on the 27th April to discuss the results.
Today though all of my joints have been cracking and snapping and I am twitching from head to toe.
I'm just baffled with it all.
How have you been? Have you had any further tests/symptoms?
arlethala73575 Guest
Edited
It is the psychotherapist who will explain to you what happens to you with anxious , how to get out of this state and start a new life. The treatment of disorders such as neurosis includes, first of all, sessions of psychotherapy, as well as https://www.cbdproducts.pro during which you and the doctor together will find the cause that caused the disease and work it out.
Sessions of body-oriented therapy, art therapy and other rehabilitation procedures will teach the body and soul to enjoy the sensations, and competent drug support (not prescribed for everyone, only if necessary) will consolidate every step towards the result. And, since the trauma or negative attitude that caused the disease no longer torments and worries you, even years after the treatment, the disease will not return to you. Therefore, do not delay in contacting a doctor - live life to the fullest without depression and anxiety.
Guest arlethala73575
Posted
Sessions of body-oriented therapy, art therapy and other rehabilitation procedures will teach the body and soul to enjoy the sensations
Did you have all the above done privately or through your GP?
If you had these privately can you please tell me which care professional you used? I really need to get my self sorted.