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Desperate need of help...doctor not listening!

Posted , 19 users are following.

lori22454
lori22454

Hi all

sorry if this is long! I had a severe chest infection in November 2013 and was hospitalised. I was then hospitalised again in December. I was off work from November until April suffering with the after effects of this infection. Since February I have suffered from extreme fatigue, pain in my muscles, pains in my tummy and pains in my legs and arms. This has got progressively worse over the past few months. I went to my GP 3 weeks ago and he ran some tests. They all came back negative. I am still in so much pain, it is stopping me from getting on with my daily life. I have 2 small children and I am a secondary school teacher (I love my job!) but I have had to reduce my hours which has had a strain financially. 

I have just returned from another GP appointment to explain that I am still feeling horrendous and to see if there is anything I can take for the pain (other than paracetamol and ibrubrofen) and he basically told me it is all in my head and that I have psychological issues. I came out in tears. I am so so tired and in agony. I can't pick my 1 year old up to carry him because of the pains in my arms. How can I get them to listen and not just ignore me??? 

Any advice appreciated. I am an intelligent and genuine person but I have just been made to feel silly and as though it's all in my head...very unfair when all I wanted was help. 

Xxxx

3 likes, 27 replies

27 Replies

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  • helenh75
    helenh75 lori22454

    Posted

    I am aching today from top to bottom and keep getting shooting pains down my arms and legs. Do any of you get this?

    I was having a conversation about it with my mother in law this afternoon and she says unless I do regular exercise I will always feel like this. I really hope the doctor will refer me to thus clinic I've been told about. Am gutted no one believes me.

    • sally_14743
      sally_14743 helenh75

      Posted

      There are lots of things it could be . A doctor needs to rule out the obvious with tests and then work down the list to the less obvious. For instance undiagnosed diabeties gives pains in limbs due to high blood sugar, fatigue brain fog , blurred vision , cold hands and feet , chest feeling tight and then the obvious thirst and needing toilet... And I am sure there are many other illnesses that can fit your symptoms... Just keep going back to your doctor .. Something is up 
  • lori22454
    lori22454

    Posted

    Hello again everyone! 

    I managed to get an earlier apply with the nice GP today and all went well. She thinks it's possibly ME...She mentioned it before I even had a chance to. She isn't happy with the twitching and trembling I'm having in my left leg. She did my reflexes and said they didn't seem right. She has referred me to neurology at our local hospital (RVI). She said it may take up to 3 months before I'm seen, but to go back of I notice things getting worse. She was lovely. Very understanding. Has anyone had am appt with neurology? Any ideas what they will do when I go for initial appt? 

    Thank you so much for all of your kind comments and support xxxxxx 

    • sally_14743
      sally_14743 lori22454

      Posted

      The m.e specialist we saw at truro hospital was a neurologist ... So so pleased for you . They will send you what you need to bring with u to appt.  we were asked to bring medicines and a written account of when you first started feeling ill and what happened and your symptoms since ... But they will explain all. 3 months not long .. Excellent 
  • jackie00198
    jackie00198 lori22454

    Posted

    So glad that you've found someone who takes you seriously. A neurologist might order a nerve conduction test. I had one. To optimize your time with your doctor, of course bring a list of your meds. Also, type our all the details of your illness, what symptoms you've had and when they occurred. The more clear and pricise you can be, the more helpful your information will be. Also, if you've had adverse reactions to any meds, note that as well.
  • kathy1122
    kathy1122 lori22454

    Posted

    Hi,

    Are you still feeling the same? iv been through 5 years of this iv had nearly all the symptoms and still im being ignored by gps being treated like im exagerating the pain im in, i went to a specalist after 3 years waiting to be refered at maidestone who were not good they put presure on me to exercise and told me I had depression after 3 years I got a bit better after getting advice on line but have had no help whatsoever from doctors, the best advice I can give you is to keep talking to people who have ME because you wont get it from your doctors, the dont realy care and are pig headed in my opinion, im only a beautician and I wouldnt dream of treating my clients with this amount of neglect and disrespect so why are they getting away with treating people this badly. I can give you advice from my 5 years is to take action as quick as possible with the advice from other people,,my little bit of advice is to remember you do have an illness, always rest before and after doing anything strenuous, sleep for 20min whenever you need too but not longer as this can cause more problems, walking is the best exersise for ME, dont do anything like swiming as this exausts your muscles taking Zink and vitamin C effervescent was good for me but doesnt always work for me as iv got used to that raw food and extra Oxygen from walking whenever you can then sleep for 20Min afte and remember mental activaty like studying can be exusting too.

    Hope you start feeling better, k

  • Hannahjade
    Hannahjade lori22454

    Posted

    I know this is quite short, and may well repeat what others have said, but you really should change your GP, either to another in that practice or practices all together. It is not all in your head you should definantly switch smile
  • mik2015
    mik2015 lori22454

    Posted

    Hi Lori,

    This problem is more common than you think.

    My advice is to make another appointment and take a friend with you as a wittness. Formally ask for a second opinion and also ask for your concerns to be officially logged on your medical record.

    Also send a recorded delivary letter to the practice manager expressing your concerns about how you've be treated and keep a record of the delivary reference details. Always remember to be polite and above all, be factual and truthfull about your problems and concerns.

    Keep a diary of all visits to your doctor and what was said at each visit.

    This may seem extreme, but it's your health and wellbeing that at stake!

  • lorraine27735
    lorraine27735 lori22454

    Posted

    I am going through exactly the same thing I have fibromyalgia thats why i hurt and it hurts when you pick up your kids or they get on you. I am suffering with pain everyday feel ill most of the time but because My issues with pain vary so mush I feel i am swimming in the ocean and no one can hear my crys for help its really hard to cope but go see a different GP

     

  • alison69310
    alison69310 lori22454

    Posted

    Hi Lori don't know if you ve resolved the problem yet? Have you been tested for b12 deficiency?
  • dentalcfs
    dentalcfs lori22454

    Posted

    What was the cause of chest infection? Have you done fecal test for candida infection?

    Are you willing to try virgin coconut oil (VCO) for a while? Try 1 spoonful first and see the effects in 1-2 hours if you're curious.

  • andrea98291
    andrea98291 lori22454

    Posted

    Hi I have just read your first post and to say

    I felt a wave off relief is a understatement

    I visited my gp today and this is the third visit all my blood test came back with animia been the only one positive

    I even tried to show her a video I took off myself on my worst day she wasn't intrested I did say know I am ill I told her off my family history off cancers her response was just because your grand mother and mother died off breast cancer doesn't mean you will my mother died I don't presume I'll get cancer why do you ?my reply was cos I feel like I am dieing I can't raise my arms I can't walk staight my back is making me walk twisted Im so tired I can't function fir more than 3 hrs without sleep my mam hadore energy 2 days before she died than I have by 3pm !! She made me feel idiotic and I cried which made me angry that I let her see me so upset when she clearly thought I was just depressed anyway I am waiting for a appointment at the cfs clinic but it felt like she thought I was just wasting everyone's time

    I read your posts and all the people that replied and I feel a little better

    How are you now xx

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