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Desperate!! What is my best option for a procedure

Posted , 18 users are following.

akil41128
akil41128

Which procedure gives us most sustained results with fewest complications?

0 likes, 26 replies

26 Replies

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  • lee12629
    lee12629 akil41128

    Posted

    Look up gamma knife surgery. Its not really surgery but radiation is used
  • metsfanLisa
    metsfanLisa akil41128

    Posted

    I did a ton of research on this, and I ended up having MVD surgery.  The most invasive, but the best percentages of success.  It certainly depends on your MRIs and the possible cause of your TN, whether it be trauma, MS...After all of that, the surgery was successful for only four months!
    • Stupid1
      Stupid1 metsfanLisa

      Posted

      Metsfanlisa,

      I had MVD surgery on July 27, 2016 got out of the hospital on August 8th 2016.

      I have a dent in the back of my head where my doctor cut a muscle to get to the trigeminal nerve

      I was getting shocks and pain to my face my shocks are gone, but I still get painl in a lesser form to my gums

      God bless

      us and keep us and give us peace

  • fed-up
    fed-up akil41128

    Posted

    hi, im in the same situation!! i don't know which way to go. i desperately wanted a neurectomy until  i read the nerve grows back, i like the idea of cyberknife, then i thought i would go for the glycerol injection but then i read you can get anaethesia dolorosa, but then i read you can get that with nearly all the procedures so im still none the wiser. my meds are coming to the end of their life and i would like to try one more tablet but i still need a plan set in place for when they run out. im currently looking into a  more herbal (if you like) treatment. im fed up with no one doing anything!

    ask to be referred to addenbrokes (if you're in the UK) their the head specialists, that where im going in a few months to at least give to botox a try. come back and let me know if you have anything you're interested in but i've seen two neuros now who don't know anything! but don't be like me and take it, argue with them to make them bleedin well listen and do something.

    • army183
      army183 fed-up

      Posted

      The Addenbrookes neurosurgeon Robert Macfarlane is the top dog in this area and he has special interest in TN. He will go through all the surgical and other options with you and he has a team that work with him. You need to choose someone who's done a load of these ops - he is one of those people. Get an MRI if you haven't already

      Good luck

      Cheers

      Big D

    • Tnhurtsme
      Tnhurtsme army183

      Posted

      If you have trauma to the nerve in the face what options do you i have as i have tried a couple different drugs im now on cymbalta i reluctant to stay on this drug because of the of the withdraw process is horrible any suggestion
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