Desperately need answers

Hi all.. This is my first time posting in any forum like this. I am so desperate. On June 10th I started feeling very lightheaded and kinda like I was having an out of body experience. I went to the emergency room where I was given meclizine and a ct scan which came back normal. I was also having palpitations and tachycardia. Probably because I was panicking. The following morning I woke up with tremendous pressure in the head and a feeling of fluid in my ears and what I describe as a feeling of dizziness but not true spinning. The pressure was so intense that my eyes were blood shot red. This continued for approximately a week and a half. Then on June 19th I started feeling better and sat on my boyfriends boat for a several hours (which is something I do on a regular basis) woke up the following morning almost back at square 1. Only this time I'm left rocking, still with ear fullness and fluid feeling in my ears. I forgot to mention I flew twice during this time and oddly enough it was the only times I felt completely normal. I have since seen an ENT, had several tests done. I was found to have chronic sinusitis, allergies and inflammation/cysts in the sinuses. I had a VNG (balance test) done. I had balloon sinuplasty done last week. Followed up yesterday only to be told that my ears seem perfect and that although there's some possible vestibular neuritis the dr said it must be the brain and not from my ears. I'm so confused and lost. My vision has been impacted, it's very difficult and not safe for me to drive. I can see everything but all of the cars/the motion seems to make my brain go in overdrive. I went for vestibular rehab and was told I failed the visual portion. I asked what that meant and I was told that I'm compensating visually but not well. I'm trying not to get depressed but I don't know what to do or where to turn. I have not worked in 7 weeks because I drive for my job and I can't do it. I'm still having the rocking sensation. Not quite as intense but my balance is off. I'm doing daily VRT exercises at home. Any suggestions would help. Has anyone ever had vestibular neuritis not caused by the inner ear? Or is it possible that my ears tested well but could still be the cause? I forgot to mention I have tinnitus which I've had for 16 years. A result of another episode like this I had in the past. This is the 4th episode over the past 20 years. I am a 41 year old female, that's normally very active. Please help.

0 likes, 5 replies