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Desperately seeking advice...

Posted , 3 users are following.

Emerald85
Emerald85

Hello everyone. I am new to this forum, and have decided to seek some advice to decide what my next action should be. I am a 29 year old female, with Fibromyalgia and Joint Hypermobility Syndrome. For the past year I have suffered from constipation, abdominal pain and bloating, but over the past 6 months it has progressed to severe abdominal pain, blood and mucus in stool, and nausea and sickness constantly. I have joint pain anyway due to the Fibro, but my lower back is in so much agony i can hardly walk. The Doctor took a stool sample. This came back showing a Calprotectin marker of 275....anyone know the significance of this? He said it indicated IBD, either Crohns or Colitis, and booked an 'urgent' appointment for me with a Gastroenteroligist. This is 8 weeks away!!! I can not eat normally, I have lost 1.5 stones in the past 3 months, and i am bedridden 90% of the time. Would it be reasonable to expect an earlier appointment than this, or is this generally what i will have to encounter during flare ups?

Any feedback would be appreciated, as i am not aware of much regarding IBD.

Thanks xx

0 likes, 3 replies

3 Replies

  • kevin27135
    kevin27135

    Posted

    Hi Emerald your symptoms are very similar too mine I had 2years ago,my own GP was very confident I had crohns before I was diagnosed I had lost about 3 stone in 6 months,after I was put on steroids I did start too feel better but after a while they didn't really have any effect but gave me a enlarged pancreas, they then put me on infiximab this has made me feel better but I still have the cramps and pains but I am learning too live with these.i have put on 6 grams in six months, I sympathise with how you are felling but I don't think there is a quick fix x
  • rose_smart57598
    rose_smart57598 Emerald85

    Posted

    Hi Emerald i have crohns for the last ten years but some of your symptoms aren't the same as mine always take your medicine that you have been given when I had diorea which happen quiet alot I would eat kent pumkin boil or roasted alot of it and when i was constipated i would have a red wine just a thought and don't forget to take any meds that you are given bye

  • peter82318
    peter82318 Emerald85

    Posted

    It depends on which hospital area you are in....some are much slower than others. I had to wait threemonths myself ..I tried the gemlite during my wait and it seemed to work well
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