Desperte For Advice on ETs.

Hiya, give it time....mine took at least 10 days before I noticed any change.  Mine always worse first thing in the mornings due to drainage during the time.  But things over here in little ol' England are doing just fine at the moment x

Hi Anne, I sent you a reply but it's been sent for moderation, probably because it had a link in it to a clinic I have found in Coventry that does the ballloon treatment  I wanted to ask you if I should still take my nasal spray in addition to my tablets please?  It is fluticasone propionate. Better known to our American friends as Flonase. I am half American but live in England too, Wolverhampton  remember.  Hope you are feeling better soon and have a great day xx

Well, that's debateable, but I have started my Flixonase yesterday, as I was still blocked in left nostril....worked a treat.  I google everything to make sure it's ok and it seems it is.  Usually, when I'm taking Pred I leave off my steroid inhaler for my asthma and steroid nasal spray, I'm a very impatient person and want everything to work straight away, so thought to hell with it I'm going to use it as well as the Pred.  not going to kill us for the period we're on the Pred.

Anne

Dear Alexia.Was the person in Coventry Mr.S R. ?I don't want to put   his full name here as I don't want him  to be inundated with calls.

I do hope he can do you some good.I'm in Leeds & so far have been unable to find anyone in the area who does this procedure.

Dear Anne5078,It's odd how the condition varies so much.First thing in the morning is my very best time,in fact almost totally clear,but after being up for about 15-20 minutes it cuts in & stays until I lie down again.

Dear Alexia.Thank you for that.From what I 've heard id that Mr.S.R.only works in the private sector which would be O.K. with me if I thought he could do something for me.Is Dr.S.D  in your area  & only can be seen privately too.

He is Coventry, and I believe he is private.  I don't have a lot of money but I don't care what I have to do to get this fixed.   xx  Good luck to you.  First thing is the morning is my best time too.  But I think that is just because I haven't been stressing for hours.  xx

Dear Alexia,It seems that only  people who have this condition are the only ones who can grasp of how that unseen pressure builds & builds.Also how it affects our daily lives.Reading lots of the comments on these pages it seems that many come here just to air long lists of their own complaints & looking for sympathy,not constructive help .

Agreed.  That is why I am so grateful to Ann for giving so much valuable advice.  She's a miracle.  Yes, I find that people cannot grasp how fatiguing and distressing is.  I get exhausted and irritable with having to strain to hear what people are saying all the time.  So now I am just locking myself away and working on the internet until I can get the matter resolved.  Or as Anne previously said - shove a knitting needle through my head!  I have heard that Evening Primrose Oil is good for post nasal drip, which for me started this whole nightmare. xx

At least this forum will let people exchange information about drs. I got kicked off another one for mentioning my drs name and referring people to the DRS TV show where my surgery was taped. I wasn't even allowed to tell people to "google" it after they told me i couldn't give out specific info,  It was very frustrating because it was people suffering and not getting any answers to their questions.

Dear Diana,One has to be very careful about mentioning names,especially

professional names.Asking questions,like we all do is what this site is all about,BUT getting answers is something very different.All the answers I've had from professionals seem to have been vague & evasive.So far I've only had one direct & positive answer from the first specialist  I've seen.The reply was

THERE IS NO TREATMENT & NO CURE.

So far that has has been the case

Alexia 69415.This is my reply to you as well.Please don't use the knitting needle  

No definitely no knitting needle LOL Michael.  For that image to go through my mind many years ago when my ears felt so very blocked, I must have been in a bad way.

I'm so very lucky with my ENT consultant and I could shout his name out loud.....he's just brilliant, so sympathetic too and always trys his best to sort me out, which once again he did this month.

Having to take all these different drugs, possibly for the rest of our lives is daunting, but what else can we do....keep having surgery isn't the answer either.  Doctors aren't God, there is only so much they can do for us, with the help of medication.  I got ill at the age of 47, next month I'll be blinking 70 and continue to experience it.  I think the longest I've ever gone without a daily problem with ETD is four months.  I thought it had gone forever, but the little beggar came back to haunt me yet again.

Grin and bear it is all we can do, with a little respite now and again.

Anne

Anything private could be sent via Face book private messaging, if you're all on it

Thanks Anne,

I'll see how I get on with the Prednisolone and my hearing test and see what happens then.

Still no relief in sight  

If I'm not happy after the speaking to the audioligs I shall bu you for the name of your ENT - via FB.

Have a great day.  

I agree Michael, my dr is very public about his pursuit of helping people with ETD. I feel bad that you were told that there is no cure or treatment.  Anne is right, drs aren't god, they don't have all the answers.... however, they are learning more every day about this condition. I had an ENT tell me, "you will never get better from this."  At the time unknowingly, i had a superbug sinus inf and ETD. When I asked him what "this" was, he said he wasn't sure, but i would never get better...he was wrong. When i finally got better, i sent DVD's to my other 6 Ent', two Neurologists, and my pain dr, showing them the two new surgery's i had that, got rid of my sinus inf, and fixed my ETD. I recently learned that my local drs have learned some of these new surgeries and are helping a lot of people that they couln't help before.  That gives me lots of hope for the future of people suffering with sinus and ETD problems!  I give those ENT's a lot of credit for listening and learning. I'm just trying to send a little hope everyone's way....