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Deteriorating Erectile Dysfunction

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Rich2222
Rich2222

Some background….

Overweight and in a high-stress sedentary job, I was previously diagnosed with Diabetes T2, high BP and high Cholesterol. I also experienced a  minor Heart attack. All of this was subsequently controlled through diet and meds (BMI, BP, Cholesterol and BGL are now in “Normal” ranges).

With low Testosterone and early signs of ED, initially I was prescribed with Testogel by my GP. As the ED symptoms worsened, I was referred to the  Urology department in Bristol, where I have been on their annual review list for the last 5 years. Initially I tried Levitra and on-demand Cialis (but responses and response times were too unpredictable) as well as a VED (not really effective and we both hated the unnatural sensations).

My currently prescribed treatment is Nebido (every 10 weeks) and Tadalafil (3 x 20mg per week).

So, up to 4 months ago, things were working quite well, but have now deteriorated significantly to the point of a total lack of confidence and (on occasion) capability.

I have asked for a Urology appointment (3 months ahead of the planned annual review) but would be interested in feedback on a number of issues beforehand. Most of the research I have done so far is USA based and I wanted get the NHS / UK angle.

   1. Any individual experience / views on the likely options at the next stage?

   2. I have tried Vitaros Alprostadil privately (no good) but haven’t tried Muse pellets. Any views on effectiveness of Urethral pellets? Also, I have read reports of associated pain afterwards. Any strong opinions out there?

   3. My feeling is that I may be heading towards injections. The actual injection doesn’t bother me, but I wanted some feedback on post-injection aches and pains.

   4. What types of inter-cavernosal injection (Caverject / Viridal / Others) are currently being prescribed and why?

   5. If it is a matter of choice, what are the Pros & Cons of the different injections?

   6. Based on previous history, an average of one treatment per week would not be enough for us. What experience do others have when requesting Private Prescriptions from their GP in addition to their NHS prescription?

   7. What is the sequence & timings of the injection process under the NHS?

                                ? How many visits to the ED Clinic?

                                ? What happened at each visit?

                                ? What was the interval between visits?

                                ? How many treatments were issued before your GP started to prescribe?

   8. Any do / don’t do recommendations for my upcoming Urology appointment?

   9. What else should I be thinking about?

 I understand that there are many questions here, but if you could find the time to answer any of these, I would be grateful.

0 likes, 3 replies

3 Replies

  • ml66uk
    ml66uk Rich2222

    Posted

    There doesn't seem to be a speciaist ED forum group here, and most of the regular contributors won't be able to help, but you could try some of the results from googling "erectile dysfunction support group uk".  There are other men out there who've been down the same road.

    This article written for doctors may help:

    https://patient.info/doctor/erectile-dysfunction

    Good luck!

    • Rich2222
      Rich2222 ml66uk

      Posted

      I was surprised not to find a more specialised group..

      I was just hoping to find someone to give more background than is found in the general NHS blurb

  • kenneth1955
    kenneth1955 Rich2222

    Posted

    Hey Rich.  I have had all the problems that you have had over the years.  Only thing is my cholesterol has always been low.  My sugar is good I have had a-fib for years Had a 9 hour ablation done last November been doing well.  also do a Testosterone Gel.  And i was 325 at one time and down to 175 now.  I had less problem when i was heavy.  But when we get older nothing works the way it should.  I have found that I do not get as hard as I should and was going to try the injections There $70 for 2.  They I was going to see the PA to show me how to do them.  But I had a problem 3 weeks ago and did not send for the shots.  Not worried about it right now just trying to get back to normal. They had me on Flomax and I stopped it the day I came home because I do not like retro and it stopped your libido.  It took be another 10 days to feel anything if you know what I mean.  No action down there at all.  Maybe next month I will call and get the injections and see if there work as well as they say.  Take care  Ken      
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