Devastated to be diagnosed with LS at 77 years old
Posted , 18 users are following.
Hello - I have just been diagnosed with Lichen Sclerosus, aged 77 years. I am a very active and fairly fit old woman, (still working full-time, I have an Accountancy Practice with my husband) and the little bit of reading I have done about LS fills me with horror. I am particularly horrifed to discover that my Clitoris has rapidly disappeared (in a matter of weeks) and cannot now be seen. Until a couple of months ago I had no problem at all and the Clitoris was normal. I just had this interminable itching since September 2015 and occasionally felt a bit sore. Thought it was simply Oestrogen deficiency. So did my GP also, but he finally referred me to a Gynaecologist at the hospital. Now on Dermovate long-term, for a minimum of 4 months and thereafter occasional use twice a month for the rest of my life (the Gynae. tells me!). I am terrified now, having read a bit, that my labia minora and other "bits and pieces" will also disappear or "fuse". I have viewed horrible photographs by "googling" this condition - I am in a terrible state - I had just begun to think that life was pretty good, and now I have been diagnosed, I am VERY depressed and crying a lot. I have had suicidal thoughts quite often - I do not want to live like this. We were thinking of Retiring (finally!) but now I just cannot look forward to a future like this.
2 likes, 22 replies
melissa0 cheneslieges132
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Jessicat cheneslieges132
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Pollyanne cheneslieges132
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best of luck in coming to grips with it, I am in my 70s and have had 3 years to get used to it.
jeri24294 cheneslieges132
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jenny99721 cheneslieges132
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I have never looked at any pictures of videos of the slow changes that occur as i know I would worry so prefer to stay a bit innocent re this. I remember when I was first diagnosed and i was preety upset the consultant told me that babies are sometimes born with it,so it kind of put it in perspectivve for me. I cannot see that if you look after the condition that it should not affect all those nice things you are going to do in your retirement. it has not stopped me sking, playing over 55;s netball and badminton and all sorts of thing. As I said you will get good practical and psychological support from this site. take care Jen
sandra01720 cheneslieges132
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harriet12877 cheneslieges132
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Chrisy harriet12877
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judy04448 harriet12877
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"Faith is not about everything turning out OK;
Faith is about being OK no matter how things turn out."
You can do this. I'm 73 and have been dealing with this successfully for years. There is lots of good info on this site. Learn what works for you. Be grateful for everything you have every day.....a business, husband, good MD, this site......I could go on.
harriet12877 Chrisy
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joanna43- harriet12877
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harriet12877 cheneslieges132
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cheneslieges132 harriet12877
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sandra01720 harriet12877
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Guppy007 cheneslieges132
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