Devastating dexascan results
Posted , 8 users are following.
Finally received second opinion from dexascan and it shows I am at severe high risk of fractures in both hip and spin, all t scores were minus and Dr said it has gotten worse and worse in past three years and Dr wants me to get Prolia immediately. I also was just diagnosed with a cholesterol of 240 and told my diet must change. I am so afraid to get the Prolia, reading horrible side effects from some and that it also raises the cholesterol levels, as does the pred so very confused. I am wondering if I can control the ostoporosis with a new healthy diet and supplements instead of the Prolia, I dont want any more meds and right now Im in pain even with the 10 mil of pred so hoping for some advice.
0 likes, 22 replies
EileenH sharon35553
Posted
If you have really got to the osteoporosis stage then you have got to a stage where diet is unlikely to work. Perhaps if you had started 3 years ago it might have been enough to prevent getting to this stage.
Do you have your actual t-scores? All mine are minus - that is normal enough at our age - but not so minus that it is a problem yet. I do not approve of the bisphosphonates (alendronic acid/Fosamax) being handed out like sweeties as a "preventative" but even I would seriously consider something if my bone density was seriously reduced.
However - remember than with most drugs you only hear the very bad stories. Nefret on this forum has been on denosumab/Prolia for well over 2 years with no problems at all - and her bone density is now classified as normal.
sharon35553 EileenH
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EileenH sharon35553
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Those are very low - -2.5 is the borderline between osteopenia and osteoporosis.
It is said that cutting carbs helps to reduce cholesterol - it isn't easy really. But if you don't have a history of cardiovascular events and your family history is fairly good then there is less to worry about with the chlesterol. I suspect mine is about that but I don't take statins - I had one brush with them, never again! It made PMR look quite mild!
sharon35553 EileenH
Posted
Thanks again,
Sharon
EileenH sharon35553
Posted
I have basically cooked 2 separate meals for years - since my husband had cancer 22 years ago his tastes changed and nothing would induce me to eat what he likes (not a lot of variety to boot)! But with a bit of ingenuity it is possible to come up with things you can share - and add the extras for them. My daughter does much the same on Slimming World and with 2 large and fairly sporty men to feed. She uses veg where they get pasta. She doesn't have roast potatoes - they do and she has roast veg. If we have meat - he gets fries or bread or pasta with it, I have veggies or salad instead.
Beware - I just looked up the Barilla vegetable pasta, if that is what you mean - it still contains wheat and has a fair bit of carbohydrate in it. You will learn how to read labels very closely but it becomes second nature after a while. And really - baking needs to become something for everyone else and jsut a treat for you very occasionally. I know it sounds hard but it is for a good cause.
If 10mg is doing very little you probably need to try 12.5mg initially and then work down - you can mix days of 12.5 and 10 to reduce so the total dose over a few days is going down, it doesn't have to be the same dose every day. Do discuss it with your doctor - but there is no point at all taking 10mg of pred if it isn't managing the pain.
Mrs_Hobbles sharon35553
Posted
Hi Sharon, you should get yourself a spiriliser and you can spirilise courgettes instead if using pasta, honestly once you have a sauce on it, like any other pasta, you wouldn't notice the difference!! My daughter adores pasta and would live on it 24/7 and she loves the courgette instead. You should give it a try! 😀
sharon35553 Mrs_Hobbles
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EileenH sharon35553
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Anhaga Mrs_Hobbles
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We don't have a spiraliser (yet) but a vegetable peeler did the trick and zucchini/courgettes didn't take too long to prepare.
EileenH Anhaga
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sharon35553 EileenH
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sharon35553 EileenH
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track sharon35553
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Just a bit of information for you to think about.
Nefret sharon35553
Posted
Yes, confirming Eileen's reply, I have no obvious side effects from Prolia and bone density is now in the normal range.
If you have any questions I'll be happy to answer them.
sharon35553 Nefret
Posted
Nefret sharon35553
Posted
No jaw problems, no UTI's (oddly enough I had a severe one just before starting Prolia). The problem is that all that gets known are the bad ones, never the good ones.
If you looked up the side effects of paracetamol, you'd never take it again.
Guest sharon35553
Posted
Michael moseley did a good programme this week BBC2 last friday at 9pm talking about Omega 3 !