1. Community
  2. Diabetes and hormone problems
  3. Diabetes

Diabetes insipidus- can't lose weight

Posted , 2 users are following.

andrew32489
andrew32489

My wife had a pituitary adenoma removed 2 years ago and has had diabetes insipidus ever since. She takes desmopressin nasal spray and has been unable to lose weight on it.  Even with weights, cardio, walking miles a day- nothing but water retention.  She might ask her doctor to lower the dose but we can't find any solutions online. Any suggestions would be great!

0 likes, 4 replies

4 Replies

  • linda28225
    linda28225 andrew32489

    Posted

    What dose does she have currently?
    • andrew32489
      andrew32489 linda28225

      Posted

      She is currently taking a 0.1 mL (10 mcg) spray twice a day.  She called her dr and asked if it could be lowered a bit but hasn't received a response yet. 

  • linda28225
    linda28225 andrew32489

    Posted

    I have had Diabetes Insipidus since 1990 and all my endocrinologists have told me to take desmopressin as needed. That doesn't work for the pharmacies/insurance providers though because they need an exact amount. So what my doctors have to do is write a prescription for a reasonable amount but they instruct me to take it as needed.

    Does your wife feel that she is experience water retention and that is what is causing the weight problem?  

    • andrew32489
      andrew32489 linda28225

      Posted

      Before she had surgery to remove the adenoma she was able to quickly lose weight. After, however, as soon as she started weight lifting, she gained weight steadily for several months. Frustrated, she quit exercise altogether and lost maybe 15 or 20lbs rapidly. She attempted to lift again recently but gained the weight again. We aren’t sure if it’s all water weight. The only factor that has changed since the surgery is the desmopressin.  Hopefully the endo will give her a .5 dose or similar to try.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.