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I am creating this thread in the hope it can be a place of hope and support for those with diabetes insipidus (or health issues that mimick this condition) and also possibly provide information to help some people resolve their symptoms, or dare I say it, find a cure.
First, please let me state I am not a medical professional so please do your own research, I'm am just sharing my thoughts and ideas.
From my research over the past 2 years I have reached the conclusion that many people diagnosed with cranial diabetes insipidus, particularly idiopathic cranial diabetes insipidus may have a different underlying condition that may be causing their symptoms and may actually be able to resolve these issues and possibly cure the disease.
I find new cases whenever I look, of diabetes insipidus that has gone into remission or gone away after a patient has taken certain medications for conditions not thought to be related to diabetes insipidus.
There seems to be a link between immunosuppressent drugs given to patients that has often resulted in the symptoms of diabetes insipidus disappearing. Could diabetes insipidus for some people actually be caused by an autoimmine condition? And some medications taken for autoimmine issues can possibly resolve diabetes insipidus?
I'm my opinion there are those with diabetes insipidus due to genuine pituitary / hypothalamus issues be it from a tumor, inflammation, head trauma etc but there are also those who have an autoimmine condition which somehow suppress vasopressin. I also believe there are those that do not have anything organically wrong with their production of vasopressin but for some reason the body has become confused and has become hypersensitive to fluid intake and believes the body needs far less fluid then is actually adequate. As if the water level for the body has been lowered dramatically and whenever you try and hydrate the body instantly wants to dump the fluids out but at the same time people with this issue can still produce vasopressin and their condition often fluctuates.
I have probably said enough for now but I will share some studies and stories of diabetes insipidus in my next posts.
Please feel free to get involved and share your experiences and ideas on this subject and if you kmow of any stories of improvement/cure of diabetes insipidus please post them here.
I will find a way. Thank you.
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