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I'm a 77 year old male physician diagnosed with central Diabetis Insipidus about 8 months ago after experiencing headaches and very large volumes of urine per day. My MRI was normal and my blood tests consistently showed zero ADH (although this is not an accurate test.) I have a history of auto-immune issues (low thyroid, hearing loss, etc), so I am certain this is the cause of my diabetis insipidus, too.
I originally used Desmopressin spray, which resulted in less urination but more headaches and low sodium levels. Then I started Desmopressin 0.1 mg tablets, which work extremely rapidly and very well for me. (Acceptable urine volumes, stable weight and no headaches!)
The curious thing to me is that all I need is one quarter (!) of a 0.1 mg sesmopressin tablet at bedtime, which lasts 24 hours. I weigh myself at bedtime and in the morning so I know I have been stable in terms of my weight and fluid balance. What is even more curioser is that about every month or so I don't require any desmopressin at all for about 3 days! Then my urine volume steadily increases again.
I wonder if anyone in this forum has found that a very low dose of a desmopressin
tablet once a day works well for them. Although I am a physician (a pediatrician, actually), I think my best source for comments about such low desmopressin doses is from patients themselves, since Information from my medical colleagues or in medical textbooks is scant to say the least.
So what do actual patients think about very low doses of desmopressin? By the way, my diagnosis of diabetis insipidus is accurate.
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