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I don't know how this post will go, so please bear with me if I ramble.
I’m 34 years old and my issues started after the birth of the second child. I spent over a year in so much pain and discomfort, that it hurt to wear underwear. I was eventually given a biopsy and it came back as "chronic inflammation" and I was sent on my way. Finally, the symptom subsided and I was able to live life normally with the occasional discomfort or painful flare ups.
6 months ago, I went to my doctor (a new one due to a move) and told her my symptoms, because the flare-ups were getting worse, lasting longer, etc. She sent me to a vulvar specialist. He looked at me for about 5 seconds and diagnosed me with LS. He gave me a quick explanation on how to treat it, a prescription for Clobetasol and the word "lichen" on a sheet of paper was sent away. 2 months later, I went back to see him because I was still in a lot of pain even using the clob. He made me feel like I was wasting his time. He acted annoyed with my questions and told me that, despite both my husband and I agreeing that the treatment plan I was following was indeed what he told me to do, I was doing it wrong. I left feeling like overwhelmed, sad and lost for what to do. Both my husband and I decided I should find someone else, but where we live, it takes time to see a specialist.
Ever since that time, I've been battling feelings of depression and hopelessness. I keep having symptoms that, for the most part, don’t fully go away even with the use of Clob, constant moisturizing, etc. Even when I feel symptom free, it doesn’t last more than a day or 2 before I feel the symptoms flare-up again. The constant pain and irritation is taking a toll on me. I’m not sleeping well, I feel like I have way less patience than I normally have. I am unable to have a sexual relationship with my husband because it hurts (not during, but after). While my husband has been nothing but wonderful, I worry that this going to take a toll on our relationship. I feel like, aside from my husband, I have no one to talk to about this because no one understands. I’m so worried for my future with this disease.
Sorry for the long post, but I feel like my feelings about this have been building up and I just needed to let them out to someone who understands what it’s like to have LS.
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