Posted , 3 users are following.
At 21, I noticed two spots on my legs that appeared similar to ring worm. After many creams and ointments with no improvement, I finally went to a dermatologist who diagnosed me with necrobiosis lipoidica and told me once I got my diabetes under control, the spots would go away. Meanwhile the doctor kept commenting on how odd it was that I had this so young as it is only typically seen in elderly women who and is usually a key identifier for their late diabetes. Confused and upset, I went to my primary doctor to confirm that I was diabetic and begin treatment. However, the only symptoms of diabetes I experienced was extreme fatigue (in spite of all the different antidepressants my doctors had put me on for years....I was currently taking 3 kinds daily and still exhausted) and tingling/loss of sensation. I also was experiencing quite a bit of short term memory loss, but it was always said to be from my depression according to doctors. After many blood tests and doctor changes, it was concluded many times over that I was not diabetic. I was just one of the extremely rare cases of the skin disorder without diabetes and especially being so young. However, through all of this my fatigue kept getting worse and worse. Finally my doctor sent me to a neurologist thinking that perhaps I was narcoleptic. However, after nerve tests and brain scan, my neurologist that even though I was now 23, my brain scan confirmed I was not narcoleptic, but had early neuropathy. He immediately ordered blood tests that confirmed I was both deficient in D and B vitamins. My primary doctor then diagnosed me with pernicious anemia and I have been on b12 injections ever since. However, as my super rare skin disorder still progresses, spreading even with steroid injections, I find it hard to believe that as these conditions all typically occur mainly in women much older than me (20-40 years at least) that there isn't some relation, done unknown root cause not discovered by my doctors yet. Has anyone else been diagnosed with both necrobiosis lipoidica and pernicious anemia? Has anyone else ever been diagnosed so young with either? Confused and frustrated, I would greatly appreciate any insight.
1 like, 6 replies