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  3. Fibromyalgia Syndrome

diagnosed in september 14, refused PIP. feeling low.

Posted , 39 users are following.

steph9852
steph9852

I was diagnosed fibro in September this year after baffling doctors with the condition I have since I was 13. I am now 21. After years of being pushed to one side and being told there was nothing wrong with me, or it was growing pains I finally had an answer. In august I first applied for PIP and in September I was finally diagnosed. I've been through lots of different examinations and tests to prove or disapprove conditions, I have also been on a lot of different medications until finally I'm finding gabapentin is doing at least something to help. After waiting from august until now (December) I was hoping people would realize how much pain I'm in on a daily basis and how much help I need. But this morning came the letter to say the DWP does not think I'm entitled to PIP. They seem to think I can dress and undress muself , although I physically need someone to do this. They also think I am capable of washing although, if wasn't to have someone to help me into the bath, I wouldn't be able to wash.

Sorry for the rambling I'm just astonished people can apply and be successful in recieving PIP when they're in no pain, but because a test proves they have a condition, they are automatically given it. With us with fibro, its like no one believes we have it or the severity of the effects on our body's.

I'd like to hear a few peoples opinions on the subject and whether anyone's actually been successful in claiming PIP. I will be appealing this decision and hopefully something will come about this.

4 likes, 115 replies

115 Replies

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  • Curlyanne
    Curlyanne steph9852

    Posted

    I am also astonished by how some people get on so easily claiming PIP. I have had the mobility component of my claim disallowed a year early. The nurse who assessed me said there is nothing wrong with my mobility. When I saw my GP he was so alarmed he sent me for CT and then MRI. They found I have a problem with oxygen supply to my brain. I get very dizzy and have lots of Chronic Fatigue issues. I have only just read my doctors report to Capita, he described my condition in 4 words and there are only 27 words on the whole form. No wonder I am having to fight so hard. I also had to pay £50 for a copy of my medical file as i have no proof of any of this. I am in despair and close to giving up. Sorry for the rambling x

  • susan556
    susan556 steph9852

    Posted

    OMG just came across all these stories and have been reading them. Oh dear and hear we are in 2017 and looks like nothing has changed at all.  As a CFS sufferer i dont hold out much hope of getting PIP at all, im one of the lucky ones still  waiting for the dreaded letter to switch over for DLA to PIP so every month i get it i consider it a blessing. 

    Have any of you managed to get the PIP after not getting it  first time and had to appeal for CFS or other painful ailments.

  • UKSteve
    UKSteve steph9852

    Posted

    Its apalling that fibromyalgia isnt treated seriously by the medical profession many dictors are still clueless and research is totally inadequate given the number of people affected.

    For years it has been wrongly assumed as a psychological syndrome.

    Consequently because there us no defined "test," benefits are a lottery system depending on the attitudes of your doctors and council pen-pushers ( whose goals are not to help you but to cut their costs).

    Always challenge a refusal and get back up from friends, family, professional people. Get a better GP or even get private opinions & assessments.

    Keep detailed records of regular financial costs incurred as a result of your condition.

    This is a condition that is impossible to be assessed randomly in a half hour interview by some pompous uninformed desk clerk.

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