Diagnosed this week.

Posted , 5 users are following.

Hiya, I was diagnosed this week with Gilberts Syndrome after having bloodtests. I went to the doctor because I was so tired all of the time and it was getting me down. I feel quite relieved that there is a reason for my tiredness. I was just wondering if there are other symptoms which are connected to it, like being thirsty all of the time? As I always seem to be thirsty! Also what actually works for tiredness? As I can't seem to shake it off! Thankyou!!!

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8 Replies

  • Posted

    Hi, I have been suffering GS for about 15yrs, doctors are really a waste of time (in my experience), it states on their computer that there are \"no symptoms\" so no help offered. My symptom include, loose bowels in AM, tiredness and muscle ache from about 16.00. I go to bed about 19.00 and try to get 10hrs sleep, that does help. Drink plenty of water. If I eat too much fat, or drink too much then I have been ill for 2 or 3 days, I dont think the liver can process it. Try to avoid all fats and drink lightly. Luckily i,m now retired so can please myself, it was very difficult whilst I was working. All our symptoms seem to vary slightly, best of luck and learn to live with it.
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  • Posted

    Hi, I was diagnosed about a month ago and was just dealing with it until this christmas party period. I was feeling really low and lethargic, couldn't even get in to the christmas spirit, so i had a few drinks to try and liven up a bit, but with all the the rich food over christmas there was still no difference in mood. On reading about this subject i was wondering if you have ever suffered with emotional, tearful and irritable mood swings or could this be down to something else?

    I would appreciate any response

    Thanx

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  • Posted

    Hiya I am new to all this and have recently had blood tests a week ago and the Nurse Practioner said I have a condition called Gilbert Syndrome. I have never heard of this until I googled it. I go for bloods taken again

    on Tuesday does anyone know why I have to have a second lot of bloods taken. I feel tired constantly and

    easily pull muscles in my back and ache and have a feeling like something is in my throat.

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  • Posted

    Hi I was diagnosed with gs over 6 years ago, I'm 23. I've never really noticed if I am more tired than others, I feel like a get the same as anyone else, although when I was younger i definitely was tired a lot. I regularly feel bloated and can have stomach pains but I never really thought it would be my gs, just eating a lot of protein etc.. Maybe it is directly related. One think I have to ask is does everyone else get yellow eyes? This has been the worse thing for me, really cannot stand it and will never learn to live with it. My eyes are never white, just cream coloured most of the time and can get really yellow if I'm a bit ill, not eaten for a while, or drank enough or even been tired. I think it's a load of crap nothing can be done about it as doctors feel it's not worth it. I have my routines I stick with diet wise that maybe have been working for me and that's why i don't have many symptoms other than in my eyes at times. I've had 6 years to try things and I've not had the symptoms that I used to have when younger.

    Dan

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  • Posted

    Hiya Dan what foods do you generally avoid? my eyes look white to me, maybe I should ask someone for a second opinion, but the tiredness is unbearable I cant stand it and feel like I moan all the time. Do you take anything to give you energy ?.

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  • Posted

    Avoiding greasy foods generally, when I eat clean and well I feel much better so tend to try and always eat good food. I drink lots of water everyday, I mix lemon juice as well in my water at times which I find good. I train most days and keep fit, keeps me from feeling tired mentally, I have milk thistle tablets, usually one a day or every other day, vitamin d really helps, going on the sunbed clears up any jaundice symptoms I have. Only go on for like 6-10 mins 1 every 2 weeks as England has rubbish weather. General sunshine is always the best. I take multivitamins and cod liver oil too. Nothing else really, I never really get tired now other than anyone else would in normal situations. I moan a lot but that's probably just because of the way people are nowadays haha! Don't know I this helps at all, but have had this for years and I don't really feel I have any issues apart from slight yellowing of my eyes which is the reason i first went to a doctor to find out what's wrong.
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  • Posted

    Also don't know why your having second bloods taken, I didn't but keep us updated with that if you can please
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  • Posted

    Hi.I am a new member on here so be kind!My 16 year old son has recently been diagnoses with GS,though he has had symptoms for a couple of years.Exams are looming and his lethargy,lack of appetite and general run down state is getting to be daily.GP suggests nothing,and I am busy on the internet looking for help.Is there no research in the UK. Can we not push for this or raise money to start it?All replies welcome with positive thoughts....
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