diagnosed today

Did/do you have back pain too? What did ypu do for it? Did you opt for surgery?

My mom said I was complaining about back pain since I was 12 bit they never found anything.. it's gotten really bad recently though.

I really want kids and so does my boyfriend... I'm devestaded right now. I'm so scared about the future.

Endo is terrifying, and so is back pain. I used to o lie down on a cool floor when things were at their worst in order to chill myself. Sounds weird but I'm not the only endo sufferer who's done it. Can't do this at work tho, and carpeting won't work, lol.

Many women do manage to have children but others don't. Others like me never wanted them so many of us go straight from laparoscopy to hysterectomy.

The bright notes I can mention are these: there is much more medical knowledge and awareness, and so many more treatments than there were in the '70s. Even brighter is the existence of this site. We all understand your pain and your fear, and we know that devastation, too, regardless of whether we wanted children. As to back pain as part of endo, I remember that I always had a bit of backache with my periods from age w/o onward. When I was a teen some simple back exercises helped; by age 24, they no longer helped. My backache were less severe than vg the abdominal pains, but itvaries with all of us.

The one good thing about your diagnosis it seems to me is that now you know, and you no longer have to wonder what's wrong. I hope one day soon that it feels that way for you.

I lay on the floor, massage, stretch, baths, back exercises , heating pads, ice pads and pills. .

I'm going to try taking put wheat and dairy, that's been suggested a bit.

It's so frustrating that they can't do much for the pain.

No help, I know. Does a heating pad help at all?

I had one time where one of those gel ice packs took the pain away for 2 minutes and I thought I was going to melt away...but it didnt take long for pain to come back and ice no longer has that affect.

I can't thank you all enough for your responses and sharing your experiences.

I'm so sad that so many people have been and are feeling the way I am. I had no clue it existed.

            Did anyone try any herbs to ease endo pain? there are a couple of things that I tried but i feel all of them made it worse except cupping.... Did any one try it? Its something like acupuncture... I did Cupping for two days and my following periods were really good - less pain , less bleeding .... but it lasted only for a month... You have to keep doing it consistently... I live in a town and no one here does cupping... the closest cupping place from my house is about 4 hours by drive so its not feasible for me to go that far specially coz i dont drive myself... But trust me , by far that is the only thing that helped me with my periods... 

I also tried this herb called Endovan... It did help me with my bleeding and pain during intercourse but it made my pain during periods soooo baaad that even Morphine didnt help me with the pain... and I had such terrible adhesions that I am scared to try it again....

For now docs have put me on temporary menopause, after my surgery... I hope we all get pregnant soon... and meghan I am 33 years old with no kids yet. :-( 

I have a lot of pressure from my husbands family for babies.... it is soo bad that my marriage itself is at stake...  

Thank you for sharing..and I am so sad you are going through this. I had no idea about this before.

I have that same pressure. We aren't married yet but I'd feel awful if I was never able to provide children naturally for him because he always talks about how excited he is.

Did the doctors say they were going to do anything to assist in pregnancy? Like can you do hormone therapy?

As of now I am on a shot which has stopped my periods.. Guess will have to consult a fertility specialist after I finish my course..

I heard around 40 percent women with endometriosis do not have children .. And among the rest, many need assistance so I suggest u try for babies as soon as possible..cos pregnancy chances decreases with age..

I went to my doctor today and they have put me on a naproxen which has started to kick in. It's the first time in..I can't even remember that the pain has been somewhat bar able.

She is sending me to a Gyno to talk about what to do should we decide it's time to try and get pregnant but she recommended for now, to go on the pill to prevent the lining to thicken.

She told me to try anything (like cupping) to try and find relief but said that she can't say one thing or another will help.

She was however, very empathetic and told me to come back at any point even if it's to cry about the pain. She said she understands how long of a road this will be and that she will help me in any way.

My heart breaks that women have been exeriencing this for so long and I have not known. My heart goes out to every single one of you and I hope that you all have a pain free day today. Xox

Meg

 Thanks soo much for your kind words Meg... It actually made me very emotional... None of my friends and relatives understand the pain I go through with every periods...  Every time some one makes a plan, I think about my periods date and my friends make fun of me for that... 

Anyways lets not give up hope and keep trying till we get some relief... And Meg I really like your doctor.. I think her suggestions are good... U can try pills till u decide to get pregnant ... Also try doing yoga for ten to 15 mins daily...

 I wanted to ask u, how did u use Epsom salt?  and Did it help you? I read about it on internet saying it helps for Endometriosis.....

Are u doing some thing for intercourse pain? I wish I had some solution to all my problems

If you're sensative to scent though, just the normal Epsom salts that you can get at most pharmacies or grocery stores works just the same...and take as long as ypu want in the bath. I usually read a book and try to use that time to relax. Try to avoid your phone so you can enjoy the moment when you don't feel pain.

Also, if you're on your period I would still just get a bath and then shower after to clean off. It's well worth it. Becareful about doing it every night because the salt can dry out your skin but if you need to, there's no harm.

As for the painful sex, I have not found any solution. Basically just going slow is the only thing that works. Certain positions are an absolute NO for me. It's a tough one because it just depends on the day really.

I'm interested to see what you think of the Epsom salts. If you try it, let me know if it helps.

As for your friends, don't let them get you down or make you feel embarassed. It's the way it has to be. Most women don't plan their wedding days on the day they are supposed to start their period..or a trip somewhere?! Makes perfect sense to me!!