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Diagnosed with 5cm Aneurysm near heart

Posted , 21 users are following.

kristi18883
kristi18883

Hello everyone, I'm new here and just want some advice.

Two day before Christmas, I was diagnosed with a 5cm aneursym near my heart and told, "If it's not repaired, it will burst and you will die". The NHS cardiologist had only just seen my file and met me, 5 minute before that.  He also stated that if my valve is bicuspid, they need to replace it and repair the aneursysm now. So I've been waiting for either a tube down my throat, or an MRI to get a clearer picture. So far, I've only received a phone call, from that Cardilogist, on New Years eve, saying the Tube test should be end of Jan, beginng of March, but the MRI will be sceduled in the interum. 

I'm originally from America, where my possible bicuspid valve was monitored yearly with echos. I've been here in the UK just over 4 years and only ONCE did a Dr. so much as listen to my heart, until they thought I had a TIA. 

Is this typical of the NHS? Give you bad news, then make you wait?? Some say I need to go to my GP and see if they can refer me to another place to get the tests done...others say, play up your symptoms. I am somewhat symptomatc, but so far, I still walk a mile to the bus every morning, and work a 40 hour work week. 

Any advise, words of wisdom, words of caution...any thing...I just don't want to feel alone in this anymore. 

1 like, 105 replies

105 Replies

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  • mike23675
    mike23675 kristi18883

    Posted

    you need to research the best hospital and endovascular surgeons as soon as possible , do not delay.. Check all in your area. Mine ruptured and you do not want that. This is very serious and the size is large enough to not put this off. Get yourself informed on this , then get prepared to get it taken care of.
  • pablo123
    pablo123 kristi18883

    Posted

    Hi, just Sent private Message kristi on how to find further information and research plus help into this subject.

    Regards

    Paul.

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