diagnosed with an ovarian cyst containing liquid and tissue, very worried

Posted , 6 users are following.

Hi everyone, 

I'm 32 and recently experienced a bleeding, almost like a stop-start period, bleeding and spotting (some small blood clots, one slightly bigger one) for nearly 3 weeks. I went to see a nurse at my medical practice as I thought my copper coil may have come displaced and she sent me to have an ultrasound. I also had a bit of nausea and lower back pain, sometimes on the right side, some minor lower right abdominal dull ache. I had my ultrasound yesterday and the technician told me my right ovary is enlarged and she can't tell what the cause was. I was told to make an appointment with my Dr the next day. So today I went to see my Dr, I got in right away as she put my results through as urgent. 

He told me it's a cyst the size of a larger plum I suppose, there is liquid around some tissue present. He also said there was nothing really to suggest anything terrible but it needed to be investigated. He then ordered a ca125 blood test and I'm expected to receive the results in a week. I'm absolutely terrified that something is wrong and I'm not coping well at all. I've not experienced anything like this before and have two small children. Also in early 2016 my mum passed away after a 6  year battle with breast cancer. Has anyone had anything similar??

 

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10 Replies

  • Posted

    Hi I have been told that a lot of cysts disappear by themselves. It is daunting waiting for the results of the CA125 but hoping this will show clear like mine. I have all the same symptoms including the watery bleed which the Drs didn't seem concerned about although I haven't had any period for about 7 years. Did they say they will do a watch for a couple if months and then repeat the ultrasound. Try not to worry x

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  • Posted

    thank you so much for your response. I was told that depending on the outcome of the ca125 test I would be referred to a gynaecologist. He also said I would be most likely referred even if my results come back ok, which I think is partly to do with my anxiety

    He asked me some lifestyle questions, family history ect but the things that really worry me is that I already had an ultrasound and the tech then told me to make an appointment right away, put my information through as urgent and so on. So i keep thinking, if it's something harmless then why can't a diagnosis be made on an ultrasound... i understand there's complex cysts and so on but the more I read about this I find that a lot of times it's the other way round, you have some other symptoms and then get sent for an ultrasound for a diagnosis. 

    So all I know so far is that it's an ovarian cyst, the rough size, doesn't indicate something nasty (he mentioned no increased blood flow) and that it has liquid but also contains tissue and is a little dense. 

    I'm so glad your test has come back clear. I'm just having a really hard time waiting around and I keep thinking there's no reason for me to have this, I've never had an issue, fairly regular periods even on the copper coil and honestly i don't feel i can wait. it doesn't help that i've read up about ovarian cysts and ca125 and all the false positives and false negatives

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  • Posted

    Hi I have an ovarian cyst 18 months ago I was told it was the size of a small plum and they decided to leave it however at present it has grown and I now have one in my right ovary I had ca125 which was elevated then came back down to normal range I am 54 years old and CT scan reveals nothing sinister but due to my age hysterectomy would be best for me ask them not to leave it to get any bigger and have it removed to prevent further complications in the future this could prevent eventually the risk of you having hysterectomy good luck I know its very worrying
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  • Posted

    nice to hear from you Sharon, I'm glad yours looks benign and I think a hysterectomy would give you some peace of mind.

    so today I went back to the Drs as I kept waking in the night convinced I could feel my ovary in pain and everytime i turned to my left so that the right side of my pelvis was up, I felt some pain. This morning I was convinced that my lower back and right lower back pain was now moving to the left and called my medical centre. Got an appointment to see a Dr and told her all about it. So she examined my belly and pelvic area, a little sore on the right, she could feel anything and gave me a quick internal exam. All looked ok to her and we talked some more about the cyst and how i came to have an ultrasound. So she said according to the report from the ultrasound tech, the cyst seems more complex and basically said what dr told me yesterday, chance of malignancy is generally slim and she was very sympathetic. i think it was obvious how worried and upset i was so she fast track referred me to be seen within 2 weeks by a gynaecologist. i'm a little relieved at the quick referral, still fretting and worrying though...

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  • Posted

    received my ca125, right in the middle at 17. hearing about all the false negatives and positives isn't exactly helping but i think i would worry even more if it was elevated or high 

    i'm due to see a gynaecologist on the 15th and i'm seriously considering seeing a private specialist in the mean time. the waiting around is very hard! 

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  • Posted

    Totally understand how worried you are just been through what your going through try stay positive cyst probs will be benign and if ca 125 was lower than 35 thats meant to be normal im still waiting on gynae getting back to me regarding hysterectomy good luck its the waiting thats hard xx
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  • Posted

    Hi, I've just gone through this, I'm 39 and have 3 young children. Anything under 35 for CA125 is considered normal and the majority of cysts are benign so do try to take comfort from that. I was diagnosed and saw a consultant within 2 weeks and am having a laparotomy and full hysterectomy in 10 days. My cyst is very large but fluid filled and so there is no indication as yet of anything worse so I'm just trying to focus on the surgery.

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  • Posted

    veebeeb i wish you the very best for your surgery and swift recovery. from what i've found out, all fluid is very good and it sounds like you don't have anything to worry about. 

    sharon i hope you hear from gyn soon and all the best for your hysterectomy also. i would gladly have one myself right now smile 

    i seem to live at my GPs at the moment and got some antibiotics for a stubborn cough yesterday, i picked up a copy of my ultrasound report while i was there and it says the following: 

    " in the area of the right ovary there is a tissue mass of mixed echogenicity. it measures 48 x 43 x 31 mm. no associated vascularity or free fluid could be demonstrated. appearances could represent a fibroma but this was not seen in 2015. therefore the findings must be considered suspicious." 

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    • Posted

      Heyy, how did things go for you? I've just had a really similar experience to yours today and came across this thread when i was reading up.

      I hope everything went okay for you!

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    • Posted

      Hey everything went really well. I ended up having keyhole surgery and had the affected ovary and tube removed. It turned out to be “just” endometriosis. I have no endo family history. Prior to surgery I was told it looks like some kind of inflammation within the ovary but no endometriosis was seen on ultrasound. Recovered really well very quickly. How are you getting on? Have you been seen by a specialist ? 
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