diagnosed with cervical spondylosis....terrible headache

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i have been signed off work for the last 7 weeks due to a horrific constant headache.After a mri scan last week iv been diagnosed with cervical spondylosis.I have read alot of the posted articles and dont have many of the sypmtoms described by many of you, (numbness and tingling), but have had a chronic headache. Thought to be tension headache initially by doctors i can only describe it as having a balloon blowing up in size under the top and front of my head whilst it being crushed in a vice.iv had very little concentration due to the pain and cannot hold a thought in my head.Obviously its been a horrible experience and i was convinced i had something very sinister going on.im waiting to see a specialist in 4 weeks and am just starting a course of diclofenic and consulting my physio tomorow.has anyone else had these type of symptoms prior to being diagnosed and has anything you done helped?many thanks for any reply

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  • Posted

    Hi Spike

    You have my sympathy, i was diagnosed with CS about 10 years ago, but its only in the last month that I have had the terrible headaches as you describe.

    I swam every day and I thing this has set of the pain?

    My Doctor has prescribed amiltripline (anti-depressant drug) for the pain,It seemingly is very good at blocking the pain signal getting to the brain.

    It seems to work most of the day until about 8pm when my head then feels as if it is going to explode and my kneck muscles are not strong enough to support my head.

    When you first try this drug, you are very sleepy for the first few days and then that seems to wear off

    good luck with physio i am waiting also on appointment.

    This web site is a great help and support as many people have good tips on how to deal with pain and the condition

    regard

    juan

    Edinburgh

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  • Posted

    thanks for your reply,the doctors did try me on a course of amiltriptine but it really did not agree with me,im also diabetic and it can afffect your sugar level control.mine is very good but it was the sickness and general dizziness i couldnt handle.apparently there is a drug in the same family as amil which i may try in the future.im sad to hear that swimming may have triggered your latest bout because i love to be ctive.iv ran a half marathon this year,love to swim and was hoping to do a triathlon next year.im guessing after my consultation i'l discover which exercise options are going to be available,im a qualified diving instructor and iv already been told that i wont be diving anymore.its pretty hard to be positive at the moment sad
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  • Posted

    Hi,

    I'm 56 and have had c/s for 30 years. I recognise and sympathise with your description of unrelenting headaches from my early experiences. My experience is this... if you can ease or, hopefully, get rid of the headache, then the whole c/s thing becomes easier to manage. I've posted some tips that may be helpfull..look under cervical spondylosis headache tips.

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    • Posted

      Hi

      My wife has recently been diagnosed with this condition and has been experiencing awful headaches for 3 weeks.

      I note your reference to tips for dealing with these headaches, but can't find the post.

      Would you be so kind as to send me a link please?

      Thanks in advance...

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  • Posted

    Hi,

    Just wondering if you managed to find any relief from the headaches. I have had them for 8 months!!! Came out of nowhere after spending a week decorating. Only recently been diagnosed with CS as they initially thought tension headache and then it took 3 months for referral to Neurologist and another 2 to have MRI done and results back. My Dr is having me gradually reduce Gabapentin dosage at the moment as it only seems to work for a short period of time after increasing dosage and I can't do that forever. I have reduced from 1300 pd to 800 so far. I am also having Physio and trying acupuncture at the moment. Physio says i'm unusual cos no specific pressure point to bring on or re-leave pain. Any advice you can give would be much appreciated

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  • Posted

    Hi there, I've suffered with CS for just over 4 years now, haven't slept properly without pain pretty much for all that time.  I've been on Amitryptline for just over 2 years and that doesn't seem to work anymore.  I've tried just about everything to stop the numbness and pain in my arms and suffer with bad headaches pretty much constantly.....that was until I started Acupuncture!  The way my acupuncturist described it to me is that the muscles are tight and tense around the discs, which then push the discs into the spinal cord and nerve endings causing the pain. The acupuncturist needles these muscles relaxing them away from the discs and the nerves making the pain go away.  We started with a 90 minute session once a week, then every two weeks, we tried a month but my headaches came back so I currently see him once every 3 weeks.  In fact I went Thursday with a hideous headache and left without one all thanks to having about 20 needles stuck in my neck!  I actually look forward to my appointment as I know I will actually sleep without pain and not wake up with a headache like I normally do! My only worry now is that my wonderful acupuncturist is at retirement age and I just pray he never gives up working! 

    Do try Acupuncture, I did have 8 sessions on the NHS but they only used about 3 needles for 20 minutes which really didn't help long term.  I found it best to go to private Acupuncturist who use lots of needles for 40 minutes then 40 minutes of the tens machine.  

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    • Posted

      Hi Carole, I have tried a course of Acupuncture and it did not help , but agrivated my pain. You see I have C S and chronic paroxi mal hemichrania, it is the severest form of migraine type headache and the acupuncure made it worse. I am trying out a Tens machine ,30 mins each day and i think it has helped a little.

      Regars Juan

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    • Posted

      Aww sorry to hear that, I suffer from Migraines too, but I only seem to get them if I don't take painkillers in time...luckily only 3-4 times a year.  I really do feel for you, Migraines are the worst kind of pain ever.  Glad you are finding the tens machine ok, I might dig mine out and give it a try, I've had a headache I can't shift since Saturday, I think stress plays a big part in mine too.  Hope you feel better soon, take care.
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    • Posted

      Just got Diagnosed. Still waiting to see The Specialist I have been misdiagnosed for at least a decade or more. Again I love the TENS unit heat and ice and always have back and head pain. Waiting to see a specialist. I was told for years it was fibromyalgia. .... no its a lot different.
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  • Posted

    Hi

    i have had cs for 7 years and headaches as you describe as well as the general symptoms. I was told that it is part of the nerve damage of cs that causes the numbing or tingling feelings in others.  Disclose arc is more of an inflammatory drug rather than a direct pain killer so you could ask for some kind of strong painkiller.  I also found lying down in a quiet and dark room helps.  Good luck Juliet.

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  • Posted

    hi i also sympathise with you i have headache (head pain ) as it feels more like built up pressure at the back of my head radiating to the top i suffer with this every single day lying down makes it worse and sends a sharp pain across my head ive had 2 lots of surgery in 3 years c4 c5 disc replacement and fusion in 2011 and c6 c7 facectomy and c7 nerve root decompression 8 weeks ago this was done on the right side since surgery im now suffering on left side same symptons my head pain tight calves both legs bladder urgency and unable to open bowels without laxatives and eanamas (sorry if spelt wrong ) on both ocassions headaches have been main sympton to diagnosis i know i have spinal stenosis and ddd can i claim disability payments ive been on sick 3mths and just been signed of for another 13 weeks im 47 feel my life is over
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    • Posted

      God I sympathise with you, Ive also had problems with bowel movement, and bladder urgency,I told the doctor she just gave me laxatives, but I thought this might have something to do with CS, having read youre post I now see it is.
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  • Posted

    Hi All.....have had CS for about 20 years. The main symptom for all these years has been stiff neck coming on overmight and causing severe headache waking me up. The frequency of the headaches increased over the years until I lived on codeine/aspirin about 20 days out of every 30. Physical therapy, acupuncture, swimming, gym, walking did not help and sometimes aggravated. Sitting at computeter caused tingling and burning in the shoulders, as did walking briskly both off and on the treadmill. I recently retired and began a search for a solution. I had heard of spinal decompression on the computerized machine and after consulting with my chiropractor decided to try it. I was desperate to try anything at that point. Lo and behold..to my great surprise...after a full course of 20 treatments I was for the most part pain free. The treatment reduced my headaches to max 4 days a month....a huge improvement. I am wondering how many of you have tried this.

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