Posted , 3 users are following.
I hope my story below offers a glimpse of hope to somebody, proof that not all CES sufferers are left with life changing injuries.
Since late 2017, I began experiencing sharp "stabbing" pains in the side and rear of my right leg and lower back, and a numbness/pins and needles in my toes of my right foot.
The pain and symptoms continued to worsen during the first few weeks of Jan 2018.
On Sunday 21st Jan, I woke up to excruciating pain in my right leg and lower back. Unable to sit, stand, walk or lay, I went straight to A&E. They advised that in his opinion I had some form of sciatica. I was sent on my way with pain relief (naproxen), and needed to book an appointment with my GP to arrange an MRI scan to confirm the cause.
Over the course of the next 2 weeks, the pain in my back worsened. I began to lose further sensation and feeling in my right leg and buttocks, my bladder routine/control began to deteriorate and I began struggling to sleep due to the pain.
Over the weekend of the 3/4th Feb, my pain increased further, and I lost next to all sensation in my right leg and bladder. After waking on Monday 5th Feb, I was bent over double in pain.
Again, a&e refused to give me an MRI scan as I wasn't deemed an "emergency", and instead prescribed tramadol and diazepam, and sent me on my way.
The tramadol and diazapem had little to no effect in relieving any of my excruciating pain. After spending the next week unable to sleep, walk, sit, stand, or even shower myself, my symptoms further worsened.
We arranged an emergency appointment on 12th Feb at my GP who immediately recognised the severity of my condition, and arranged an immediate referral to the orthopaedic specialists in A&E.
They confirmed my bladder and bowels were not working sufficiently, and immediately cathiterised me. My bladder was holding 700ml after I'd tried passing urine independently.
My bowels had not passed in 3 days.
The orthopaedic specialist advised that in his opinion, I required an immediate MRI scan, I had severe nerve damage at the bottom of my spine, and in his opinion I had a condition known as Cauda Equina.
He also confirmed my condition should have been investigated weeks earlier, upon one of my 2 previous visits to A&E.
The MRI scan confirmed that day that I had Cauda Equina syndrome.
I was immediately rushed to the spinal specialists at the Leicester Royal by ambulance, and sent down for urgent surgery.
I'm now 6 weeks post op, and the transformation and recovery is incredible. I still have a numbness in part of my right foot, and a minor numbness in my buttocks.
However, I've regained FULL control of my bladder, bowels and sexual function and have next to no pain in my back or legs (other than a weakened body, which is fully expected considering I've had back surgery) but I'm improving weekly!
Having read 95% horror stories, I hope this helps even just 1 person to know that there are those that do recover from CES, with the help and support of family and friends.
2 likes, 3 replies