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Hi I recently was diagnosed with Chiari Malformation type 1 with tiny syringomyelia. I have compared many other MRI's to mine and thankfully my syringomyelia doesn't seem to be as large as some others can be. Im only 19 years of age and this worries me. When I was a baby I had meningitis very bad and was left in a comma for awhile. I was lucky to recover from that. As I aged I thought I got my big major illness out of the way and was very excited for my future. Throught my high school years I have experienced some headaches through the night to the point where I would wake up. This seems to be a very common symptom. I don;t have these mirgraines everyday like it seems some people can get the which im happy about. Lately I have noticed the edged of my right hand where my pinky is can be tingly. I also read that this can be a symptom. My main concern is my life from here on out going to be hell. Im only 19 years old and was very excited for my future but as of right now I am not. I have been reading all of these stories and it seems that the future is always worse and it frightens me greatly. Im going to see my doctor January 5 about what I have. Does it get better? I know there is a surgery that is used as a treatment and can help people. So I guess my main question is does it get better or will my life slowly turn for the worse, im only 19 years old and want a good life for me. Also has decompression surgery help others with symptoms greatly? Thanks for the time.
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