Diagnosed with fibromyalgia
Posted , 4 users are following.
Hi, last year I was diagnosed with a DVT in my arm, by the time they found out I had multiple clots in my lungs. I now have breathing problems. I also have damage to my arm from the clot and have been diagnosed with complex regional pain syndrome. While i was recovering, sadly my brother passed away, we we're very close. A short time after that I was diagnosed with fibromyalgia. I'm not sure what all the symptoms are, but I have severe headaches and a lot of pain in the morning. I can go out on my own because I'm very dizzy and have electric shocks going off in my head. Pain all over and many other complaints. I feel I went into hospital last year with a sore arm and weighed 9st and came out with damaged lungs, severe nerve damage to my arm and weighing 12st 6lb. And the fact that I lost my best friend ( my brother ) has me feeling like I've crashed and burned.
# can't#cope
1 like, 15 replies
christine26761 claire0911
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claire0911 christine26761
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christine26761 claire0911
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gillian81509 claire0911
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fibromyalgia is less than crps in how it will affect you but a combination of the two plus the remenants of dvt etc
I'm presuming it was steroids that caused your weight gain
What adadvice have you had regarding fibromyalgia
claire0911 gillian81509
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gillian81509 claire0911
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join fibromyalgia groups
Get a referral to occupational health where you'll be able join groups have a heated swim learn excercises
proper massage once past pain barrier love it
reflexology brilliant
psychologist to discuss how xxxxxxx awful you feel
sleeping meds
pain relief
natural meds
learn what doesn't need doing
I love walking but not for first 300 yards omg I can moan and whiny but once warmed up I feel GREAT however when I Get home I'm in PAIN. But I need to walk to keep other health probes in control
hope that helps
claire0911 gillian81509
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christine26761 claire0911
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a Clinical psychologist would just make things worse for me, actually seeing one did..as well meaning as it all was...relaxation is really good......you have a real pain with a real name..a pain clinic would be good..if you could get to one..the keys they give you are great..hope things get much better precious, be blessed:-) xxx
claire0911 christine26761
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lorraine230311 claire0911
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claire0911 lorraine230311
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lorraine230311 claire0911
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christine26761 claire0911
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gillian81509 claire0911
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he wrote to my gp in his report about me in June bright sunny days ( has a huge positive effect)that I didn't appear to have mobility problems or in pain !!! This was taken from an observation from the waiting room to his room
I can have quite a few weeks in warm sunny weather when I'm considerably less stiff less grumpy reduced pain (unless you poke me ) then it starts again esp affected by sunlight
I felt v good in Egypt as v dry and warm but I loved the warm baths I could swim move felt good but I over did it as when I got out back into cold English weather I was in pain !!
When I first got it omg when my son climb on my legs when I tried to go upstairs or do all the jobs I had to change so much learn dust doesn't kill you potatoes taste nicer with skins on carrots cook while, ironing reduced to bare minimum, hot water bottles are brilliant
if u r bad order in from shops
in other words it's horrible don't let anyone scorn or think you are pulling a fast one
lorraine230311 gillian81509
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I am finding work quite difficult as it's full time and with a 3 year old to get organised in the morning then it is a mammoth task! My job is mostly sitting as I am a bookkeeper but I don't know what is worse, sitting for a period and not being able to walk or standing for a period and needing a seat! Catch 22!
Also, high heels are now a thing of the past and everytime I'm invited to a night out I feel like a tramp going along with all the other women looking so elegant and I'm sitting in my flats!
Love to you all <3
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