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Hi everyone, i was diagnosed with fibromyalgia in december of last year after months of feeling awful but im still not satisfied, from what ive seen on here the pain with fibro is constant and all over the body, whereas my fatigue is much worse than the pain i am in. My symptoms are:
Really tired all of the time, can sleep for over 12 hours at night and have four hour naps in the day which interferes with my general activities. (Worse after physical exersion)
Headaches nearly every day
sore throat or feeling of "lump in throat" and swollen glands in my neck
Muscle aches and pains
Muscle twitching and jolting, particularly legs
Particularly painful neck muscles and base of head
acne that I never had before
Severe Health anxiety
High ESR in blood tests
Does anyone relate to me or think that I have been misdiagnosed as the fatigue is a lot worse than the pain for me?
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even if you do have CFS how does that help. There is no magical cure for the condition, and in my experience little help, so it becomes a nice to know and you can start pacing to help the condition
best of luck
I have been officially diagnosed with both Fibromyalgia and severe CFS. Although in my experience I can tell the differences between the two conditions due to their symtoms, I would also say that their symptoms over cross too.
One of the clear indicators of Fibro is the pressure points. When my pressure points are pressed they really do HURT! Not just an ouch but a really "stop that or I'm going to hit you over the head with my handbag" level and it will continue hurting in the spot afterwards for a few more minutes.
My personal CFS / ME is really draining my energy, my co-ordination, my multi-tasking, my heat tolerance and now my heart rate.
I am in constant pain now, it used to be I would be in pain everyday at some point of the day but now it has increased. I would proberly say it is the Fibro that is enhancing the pain and my stiffness.
Both attack the memory especially of names but I think it is the CFS which is taking it to the level I can't remember actions that I've done only minutes before also simple spellings.
From your list of symptoms I would more hedge towards ME/CFS not Fibro. My exhausion comes from my ME/CFS and I have post exhausion problems majorly. Against your list I have them all but not the hair loss or the high ESR results.
It might be that you have them both but at this stage your CFS symptoms are more noticeable? The advantage of getting a definate diagnosis would encourage the specialists and your doctor to perscribe relivant medicines and coping techniques. It really helped me emotionally settle when I got the full diagnosis. It didn't make it go away but I felt abit more calmer when I could research the conditions I understand what was creating my symptoms.
Good Luck xx
I agree with others, symptoms are quite classic of cfs/me.
Generally cfs is classified as the weakness/fatigue element and the pain is the fibromyalgia side. Frequently both diagnosedvseparatly.
That said there is alot more to it than pain and fatigue .
I am like you, the fatigue being worse than the pain. My mobility is effected and can fluctuate hour to hour/day to night or days. Pacing helps but doesn't stop it. Very frustrating and changed life massively.
Always get symptoms checked though, don't allow dr's to presume its cfs/me all the time.
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