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Diagnosed with hemochromatosis turns out i dont have it

Posted , 2 users are following.

eric06641
eric06641

Was diagnosed years ago back in 2012 and treated ever since then.

Problem is we got access to our online records our ferritin levels have never gone above 150 .

Haven't had a blood draw since last march and and a blood draw six months later showed my iron levels at 64.

Just had another one this week and it was 140 totally in the middle of the normal range.

How we found this out was ironically due to covid.

Blood draws got put on hold for year and when i finally got in for one my iron levels had changed not at all.

Then we started looking and found out it's the records have shown this over the last five years .

How two separate hematologist managed to miss this or chose to ignore it is mindbogglingly.

0 likes, 2 replies

2 Replies

  • miller.jones
    miller.jones eric06641

    Posted

    If you had been diagnosed with this they should of been checking for faulty gene.

    Was this done?

    The normal range is made up it is the same as RDA (recommended daily allowance)

    I myself have haemochromatosis I have faulty gene also at one stage I had a ferrtin level of over 1000.

    I was for years needing to go for venesections most every 3-6 months after I had gotten it down to under 50 but once I did a big switch which was to go Carnivore diet I then didn't need any treatment for over 3 years this is how long it took for it to raise my ferritin to around 100 based of this you could claim I dont have the condition.

    Blood draw for people who do not have this condition is a good thing anyway I recommend this to everyone every few years.

    • Entwicklung34
      Entwicklung34 miller.jones

      Posted

      Im interested in how a carnivore diet would help - any details much appreciated ⭐

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