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Diagnosed with hs

Posted , 5 users are following.

Deon1971
Deon1971

hi all I'm so fed up and feeling really low I've had these nasty boils now under my arm pits and on my bottom and also the front and groin this is really embarrassing for me I won't go no where I've seen specialist and all he keeps doing is putting me on antibiotics I won't get into a relTionship I won't go swimming and its stops me from going abroad they have scared me for life I've got one now under my arm it's so big it kills me I'm scRed with them for life I've put drawing ointment on them and dressings all the time I wonder if anybody suffers the same as feel alone out here win them does anybody now a cure or anything that can help me plz ty very much

1 like, 7 replies

7 Replies

  • rachel052
    rachel052 Deon1971

    Posted

    Hi Deon,

    Please don't feel low. I know it's easier said than done when you feel your doctor isn't helping at all. I have too suffered with HS for several years. I was prescribed antibiotics by my GP which didn't help at all and was then referred onto a Dermatologist at my local hospital. I was put on a course of Roaccutane which didn't help and due to the severe side effects I took myself off them. I also feel at a loss as nobody in the medical profession seems to know what to do to help me and the information given to me by my GP and Dermatologist varies everytime I go to them. I am continually given conflicting information.

    I researched myself on this website and a lot of people recommend taking Turmeric tablets (2 a day) which you can get from Holland & Barrett and also a hair skin & nails tablet. I have only just started taking these but it appeals to me more as there are no side effects. For scarring I would recommend trying Bio-Oil at night before you go to bed. It really seems to take the violent redness out of my boils and surrounding areas.

    I hope this is of some help to you x

    • Deon1971
      Deon1971 rachel052

      Posted

      Awwww ty so much for your rely I was subscribed of rocca which put me in hospital with a bad reaction from them he's gave me some more antibiotics which I have to pick up 2m I tried hi scrub everything really it's hard isn't it Hun I will Defo try termaric do u get all those like bio oil from Holland and Barry nun pl zig again for your reply xxx
    • rachel052
      rachel052 Deon1971

      Posted

      Roaccutane really is a horrible thing. You'll get the turmeric and skin, hair & nail tablets from Holland & Barrett. They are currently doing the penny sale deal so you buy one get another for 1p. Take two 400mg turmeric per day and one hair skin & nail per day. Bio Oil you will get in Boots or Tesco Morrisons etc. I too have used Hibi Scrub but it really didn't do anything for me. It may be good to still use it in conjunction with the Bio Oil as it will make your skin a bit greasy but will help with the scarring then the Hibi scrub will dry it out prior or the next morning. Chin up, don't ever suffer in silence. If you get really down talk to your doctor. It's not worth being depressed over. I hope these work for you x
  • mikecrisco
    mikecrisco Deon1971

    Posted

    I have been dealing with thus for years 2 weeks ago they did surgery on my scrotum and butt to remove the tracks. It took me months to get a surgeon to agree to do this procedure because its so invasive and all they wanna do it put me on antibiotics which don't work once they get to this stage.

    I'd rather go through this pain for three weeks then that crap over n over well you know. And it does wear me down emotionally from having to always carry gauze with me , pain , but keep fighting and maybe one day they will find a cure for those still yet to suffer...

    As my father always said

    "KEEP PUNCHING KID ". SO I DO ...

  • Deon1971
    Deon1971

    Posted

    Ty very much guys I'm going into town now and get those from Holland and barrat and the bio oil and see how I get on its horrible it stopped me from doing a lot of things like swimming relationships mostly everything to b honest I'll let you all now how I get on ty so much for your help
  • amandaclaire
    amandaclaire Deon1971

    Posted

    i know how you feel am 23 years and it has took over my life i have HS and folliculitis together at the mo am feeling really down and depressed i have like 3 or 4 boils under my armpit i have been referred to hospital now see if this is any better i have seen 2 different dermatologist my doctors are a waste of time i have found more out about my condition through this site i have had all antibiotics and none of them worked shampoos, creams, anti bacteria washes nothing my last thing is to get my glands removed which is the last thing i want but i hope you get sorted 
  • emmauk66
    emmauk66 Deon1971

    Posted

    hi sorry to see ur suffering badly im on a group for HS and some of the remedys thats been used are vicks/blach baths/magnate sulphate but i personaly use magnate sulphate evry time i get a flare and it always burst's mine but remember what works for me might not work for others x
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