Diagnosed with HSP and send to school from tomorrow

My advice would be if he has been diagnosed recently, it would be better to keep him at home, as now is active period, things could change quickly. If it's been some weeks or months, then you could send him to school but not with intensive activities. 

Hi Kate, sorry to hear about your son. My 3 1/2 yr old was diagnosed with HSP in Dec of last year 2016 and didn't recover fully until about 2 months later. I would definitely suggest keeping your son at home for at least a month because their immune system is very weak and vulnerable with HSP and a simple cold/virus or any other various types of infections which they can easily get from school will only make his recovery longer or worse. I found that a lot of rest and good nutrition helped a lot. The symptoms of HSP might go away quickly but their body/ stamina does not come back until a few weeks or even couple months after. Good luck and I wish your son a speedy and healthy recovery!  

We are new to this aw well. We are about 4 weeks in and we have come a long way with this but we are by no means cured. We still have the rash and some days are better than others. I teach at a school and I recommend that you ask your school about doing a 504. This is to deal with attendance for your child. My daughter is only doing 1/2 days but I feel that is still too much. Get your dr to be on board with you. We started with tons of swelling and pain and a rash that wouldn't quit. We still have the rash but I would like to think that it's not as bad as in the beginning on most days. Feel free to email me with any questions. Best of luck!!

Thanks for the advice. I am so confused the doctor looked like never seen this before. He did not even mentioned to me the kidney problems he said when I asked. They give a leaflet and that is it. When I asked about the school he looked at me as I am an idiotm I have consultad a privet immunologist and He said he would stay in bed for at least 4 weeks because the moving doen't help. But I have no idea how can I deal with the school. My concert the doctors do not know eighter He said to me you have to go and pick him up if he is in pain or get any joint in swollen. But I have no Idea how my employer will deal at that. Can you please tell me what is the 504 in school?

A 504 is kind of like an IEP (individualized education plan ) but it deals with medical reasons that may affect your child's attendance or performance at school. With a 504... your child cannot be charged with being absent as long as it relates to the illness pretty much. I am in agrreeance  that feat helps but we try and do half days and just manage the rash as best as possible. My daughter is 5 and so being in bed for weeks isn't an option for her. We just do the best that we can. How many weeks are you in this?? 

We went through week two and 3 or pure torture. Jointpain, swelling, abdominal pain, and throwing up. It was awful. We haven't had any kidney affects to date and we are thankful for that. The swelling and pain has gotten better but the rash is relentless. Any time I can help please let me know. I found great people through this site that helped me and still help me and I want to give back. Hang in there! You are not alone.

My daughter is 4 and her HSP rash started on 11/09/2017 . We went to A&E and we were told it was HSP and that's it . For the next week every joint swelled and bruised and the rash spread. She then started vomiting and excreting blood . Ended up staying in hospital on 17/09/2017 . She was on an iv and put on steroids. It's very scary. We are home now her legs ache so bad she can't walk . I'm keeping an eye out for bloods and protein in her urine .

am really worried...

is it ok to have thebrash for more than 6 weeks?

please reply...

thank you