Diagnosed with Long QT Syndrome triggered by Triptans

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Has anyone else on here been diagnosed With Long Qt because of migraine medication?

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  • Posted

    I have not, had to look it up to see what it was. I use triptans almost everyday (yikes). Hope I don't develop this problem. Sorry for you.

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    • Posted

      It means my migraine with aura is uncontrolled as very limited in what meds I can get. Has anyone had botox and does it help with Aura?
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    • Posted

      Betsy....do you have to take Triptians everyday?  I just take them on the onset of migraine...may have to take 2 in 24 hour.
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    • Posted

      I have migraines almost everyday, that's why I take them so frequently. I do break them in half, and 50 usually works.

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    • Posted

      Oh, when I looked it up it talked about heart palpitations and those sorts of things. Glad it's not related to your heart. I do not get auras at all. I have had BOTOX three times, unfortunately it has not helped with lowering the number of migraines in a month. But everyone is different, hope it works for you.

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    • Posted

      I have had three heart attacks but my heart is supposedly healthy. The first one was when the discovered the QT thing. I had been on Propranolol as a preventative and Sumatriptan. I didn't know then I have a slow heart rate and propranolol was lowering it further and I was constantly tired! My migraine are triggered by stress and environmentally.... lights, shiny floors, wet pavements, smells etc. I get right side weakness and stumble sometimes falling. I live in Scotland and heard on the newd tonight that botox might be approved for chronic migraine within the next few months. Not sure if I will be allowed it though. X

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